On May 27, 2013, at 2 years and 9 months old, Nolan received a diagnosis of severe autism. He hit 11 out of 12 diagnostic points of autism in his 3 evaluations with the developmental pediatrician over the previous 6 months. He was completely non verbal at the time with limited social interaction outside of those he saw on a daily basis, zero safety awareness, limited environmental awareness, extremely high pain tolerance, global developmental delays, severe sensory challenges, challenged executive functioning and while strong his gross motor functions were highly disorganized. His sensory meltdowns were very scary to him.
He was also affectionate, loved
to laugh, be tickled, and kissed. He loved to play in the water and
with bubbles. Playing in the sand was ecstatic for him. He had no idea
how to and no interest in playing with toys but he LOVED colors, shapes,
letters and words. And Baby Einstein??? We lived those DVD's for
Nolan has had anywhere from 10-20 hours a therapy a week for
over 2 years along with attending developmental preschool for 10 hours a
week during the school year for almost 3 years.
Since that day
in 2013 I have seen his development explode. He started making his daily
rainbows. He talks now and is able to say what he wants, what he likes,
what he needs. He tells me he loves me. He calls me mommy, or mama. He
says hello and goodbye to people by name. He has mastered his ipad and
all the games on it. His love of music is his own and his ipod and blue
tooth speaker are his constant companions. He loves airplanes, school
buses and cars and is now playing with them. He rocks at puzzles and is
reading, writing and learning how to ride a bike.
This is the
reality of an autism diagnosis in our family. Some days he might look
like any other big 5 year old boy, he's almost 4 ft tall. Other days he
might look like a spoiled brat. Other days he might very obviously look
like he has autism, however you think that looks.
But every single day he is my Rainbow Maker.
His future is limitless.
His potential, endless.
April is Autism Awareness month.
Be ready to be made aware.
Love and Rainbows,
Nolan, The Rainbow Maker, and his mom.
If you would like to follow my son's experiences in life and autism please join us on his Facebook page. Click here.