Showing posts with label teaching. Show all posts
Showing posts with label teaching. Show all posts

Monday, March 7, 2016

Blog Name Change

Hello all!

You may have noticed a name change in my blog. I'm glad you have found us even with the name change. I have a number of reasons why I did this but the biggest and truest reason is that life has changed, and I have grown. My love for my sons has grown and how I express that love out loud has changed and expanded. And the new title of the blog now mirrors that.

Crystal baby - is my sweet survivor, Nolan. He's 5 now and in his final year of preschool. He is my crystal child. He is one of many children coming in who need a different world so that they can grow, develop and thrive. He is my driving force of change; in my life, in his life and in the world. Change is never easy and he challenges me to embody the change I wish to see in the world. He is the reason I am "Be the change you wish to see in the world." - Ghandi.  I have danced back and forth on embracing this - Back because of fear that it was too big and too small and because before 2010 I never wanted to do this...  And forth because it was mine to do because of love, what I know to be right and because I am uniquely qualified to do it. (As we all are uniquely qualified to succeed in our own lives) I was resisting the change. I am done resisting. Let's do this.

Star baby - is my sweet little man, Eli. Star baby is my best way to describe him. He was symbolized by Angel baby in the previous blog title which is a common title in the baby loss community. It's used to let others know that this baby is a baby who has died in utero or shortly after birth. I have used angel baby with conflicting feelings. It just never seemed to fit what I felt. Star baby always felt right and true. Images of the sky, stars, galaxies and universes was just a better match to Eli's energy.  The work I do in the TTTS Support Team non-profit is just a small expression of my continuing love for my son.

Me - is me. This one has been hard too. My life is not quiet, nor slow but it can be repetitive and overwhelming. I have always embraced self love and self care AND I watched me slowly go under with the demands of my life over the past couple of years. I remember my flight attendant days where I would advise 100+ people up to 5 times a day to secure their oxygen mask first and then assist their child or the person next to them. I would have people ask why and I would explain that if they don't help themselves they cannot help anyone else.... Yes, I used to teach people this.... And yet... It was never my intention to ignore or disregard myself, I believe I deserve love and care.. It was exhaustion and overwhelm that stopped it and now I have further to go to get back to where I was and more forward.  I am hoping that since I have stopped fighting what is I will have much more energy to live in what is, happily.

So here we are Crystal Baby - Star Baby and Me living in peace with reality and ready for change!


Thank you Byron Katie.


Saturday, September 6, 2014

Twin pregnancy, TTTS Diagnosis and Premature Birth


March 24, 2010
This is the day that changed my life. The day I found out I was pregnant. I was in such shock I called my friend Tracy and actually sent her a picture of my pregnancy test just to make sure I was seeing it correctly. Her response – “I suck at math but I see two pink lines.” And so that was it. I was single, 42 years old and pregnant with my first child. WOW! On top of that I was self-employed without insurance. But from the moment I knew I was pregnant I knew that this baby was mine and I would keep it. There was no other option for me and so I cried and cried and cried. I cried in wonderment, shock, fear, grief, love and gratitude. I took the 2nd pregnancy test at 2am, just to confirm. Yup, still preggers…. How the hell was I going to do this?

The first person to tell was the father of the baby, M. He was not expecting this and he needed to know. It was quiet shock that sat in the room for a long time after I said the words. What was going to happen with us? We were not anywhere close to any commitment bigger than dating. The evening ended with neither of us knowing anything other than both of our lives were changing.

After telling M I told my friend John. I went to work at the store were I see my clients and John was there. I adore John, he is like the older brother I never had. I knew that I was never going to be able to make it through the day without talking to him and if I talked to him he would know something was up. So I sat down to chat, he said something about the fact that I looked freaked out. I agreed that I was freaked out and went on to give him the news. I started to cry as I said it. Even saying the words brought on overwhelming emotion. I didn’t know what I felt but boy I felt it! John asked me if I would be keeping it. I knew the answer to that one. Oh, yes, this one was mine. John called himself Uncle John and it seemed quite fitting.

The next day I went to Planned Parenthood and had another pregnancy test, the third one. Oh, imagine that, still pregnant. They gave me a tentative due date, 12/1/10 and they gave me a signed document, the size of a prescription, confirming my pregnancy. I told them I didn’t need this and the lady looked at me and smiled saying “If you don’t have insurance, the state is going to require this for you to apply for insurance.” Guess that means I will be applying for AHCCCS – Arizona Health Care Cost Containment Services. They put a rush on expectant moms, only 20 work days before a response.


Telling the Family - April 13, 2010
As it magically worked out, my mom was planning a trip up from Tucson for the weekend, the perfect time to tell her face to face. And so I did. I could barely keep it in. I had to tell her and tell her immediately. I don’t even know if I waited 10 minutes after she got here. She responded quietly but I saw the smile on her face. I saw happiness. I cried when I told her too. Still not knowing how I felt but definitely feeling something. She shared some stories from her pregnancies as we went to Target to buy disposable rubber gloves for when I clean out the cat litter box. We discussed how to take them off correctly. Pulling them off inside out is how you do it, in case you did not know. It’s an old trick I learned as a flight attendant.

Next on the list was my brother Lucas and his wife Whittney. They are expecting their first-born, Owen, the last week of May. It had been a difficult pregnancy for them. Their son was diagnosed with Congenital Diaphragmatic Hernia. That is when the baby’s diaphragm does not develop completely and abdominal organs can be pushed up into the chest cavity limiting the development of heart and lungs. I have seen Owen in good, strong health. His spirit visited me telling me he was going to be ok. I have seen him in perfect health since then. I was excited to tell Lucas and Whittney because now their son was going to have a cousin very close to him in age. What fun! – Anyway, they were excited and very sweet both saying that I would be an amazing mom. I hope they are right.
And then came my brother Josh and his wife Natalie. I told Natalie first, on the phone,she screamed (softly) and told me I had to Josh right now. She put him on the phone and watched as I told him. When she could tell I had told him she began her happy dance in the living room. They had been the only ones in my family who had children and they wanted their three to have some Tomczyk cousins. They had their first at age 21 and here I am having my first at age 42. I am still not sure which age is more challenging……

And next to tell was my sister, Laura, in North Carolina. I called, we chatted for a bit and then I let go with my news. She had lots of questions, like I knew she would. It was a great conversation and a good way to make sure that she will make it to AZ for Christmas with the family!
My aunties (dad’s sisters) and uncle Chuck know along with Bev, the wonderful woman my dad spent the last part of his life with. Everyone has only had words of support and love. You know who you are. Thank you!

I know what a gift my family is to me. I am sure that my baby’s various aunties and uncles (blood relation or not) will play such a big part in his/her life. Both of us are lucky, lucky people.

Kidney Bean: 8 Weeks - April 21, 2010
They say that the baby is the size of a kidney bean this week. How could something so small wreak such havoc on my adult body? I imagine I will be asking this question even more often as the baby continues to grow.

What I have learned about eating – when I feel nauseous I need to eat. The baby wants healthy food, wants me to eat vegetarian, doesn’t like food with a bunch of different ingredients and does NOT like ice cream. Just the thought of eating ice cream again makes me feel sick. I tell you though; I cannot get enough pickles, chips or even french fries!!!!! – craziness!

I got some good news on Monday; I have been accepted by AHCCCS (Arizona Health Care Cost Containment System). I am so thankful knowing that I can get the health care that I might need as a pregnant woman. I have checked into different hospitals and it looks like Desert Banner is my choice. They offer alternate therapies and even a birthing tub. I LOVE the idea of a birthing tub and giving birth in water! Seems fitting for a Pisces woman like me (the zodiac sign of the fish!)

I have been working 6 days a week most weeks and I need to change that – too tired! It is time for me to start figuring out how to make more money with fewer hours. Everyone wants to know how to do that, huh? I will be making some changes to my schedule in the next couple of weeks.

Being pregnant has raised the bar on what is acceptable in my life and what is not. Some things that were acceptable to me as a single woman now have no place in my life since I am now responsible for someone else. These things include how/what I eat, how I spend my time, the people in my life. I am not sure why it took a pregnancy to put a higher value on myself but it did and I am going with it. If something is not good enough for my baby it is not good enough for me.


Single Parent -April 27, 2010
Some big things happened this past week.
I made my first Dr. appt for the first week of May! I am looking forward to it.
I changed my schedule and no longer work on Sundays. I always had clients on Sundays but the numbers were low. I will still be available at the same location on Wed-Fri for them. It will be good to have that extra day off.

The baby and I got our first gift from Auntie Angie! It is a wonderful stuffed toy and a hooded towel in the gender neutral color of green. We are sooo lucky and grateful.
The baby really feels like a girl to me. I can’t wait to find out.

It seems I will be a single parent, very single parent. I had a difficult conversation with the baby’s father, M, to let him know that I do not have romantic feelings for him anymore. I had been feeling this for awhile but put off saying anything. I knew it would hurt him and yet it was true so I could not act as though it wasn’t. I was not going to be dishonest. I told him that I want to work this out as friends and work together as parents. His response was to let me know that he is not sure he wanted anything to do with this now. He ended the conversation with “I don’t know if I will call you again.” I am sad for him and what he will miss out. I am angry with myself for being involved with someone who could do this. Many mixed emotions… I do understand that he could have spoken in anger with the intention to say things to hurt me. Time will tell. I am not making any long term decisions about him but I know that right now I am not spending any more of my time or my energy on him. Focus is growing a healthy baby and building what we need. Time to step up, meditate, connect with my divine support system and take no prisoners – Necessity is the mother of invention – So let’s invent!

Miracle, a Heart Beat and Mothers Day - May 11, 2010
After almost a week in the hospital, Whittney is still pregnant and Owen continues to grow and develop as his parents get the world ready for his birth. I saw the beauty of your love, courage and strength. My nephew, Owen, chose his parents well.

I heard my baby’s heart beat on Friday, a very powerful sound, hearing a heart beat coming from your body and it is not your heart! WOW – I am not just tired, fat and nauseous – I am pregnant too!!
The doctor also mentioned that she was concerned about my thyroid. It is a little swollen and my thyroid is under active so I am going in for a thyroid ultra sound next week. They will also be checking my blood. I understand that a thyroid problem can cause problems with pregnancy so as much as I do not want to, I may need to go on medication for it. Maybe my tiredness is related to this….

My baby ultra sound is scheduled for May 24th so pictures will be forth coming!
Reminder to self – Never, never, never have 3 glasses of lemonade for lunch – at least not without Tums very handy for the heartburn I just created!

I had my “first” mother’s day this weekend. Thank you to all of you who thought of me on this day. I really thought that I would never experience this in this lifetime. In honor of mother’s day I went shopping and bought some maternity pants and a new bra. They are my friends!!!!

Birth, Surgeries, Twins and Babies R Us - May 27, 2010
It has been quite a time since I have written and as you can see from the title much has happened.
My nephew Owen was born via c-section Monday, May 24th. Welcome to the world my dear! He had his diaphragmatic hernia surgery on Wednesday morning and did amazingly well. He is currently on a heart/lung bypass machine and will continue to be for the next 10-14 days. Keep healing Owen as your lungs develop and grow and keep astounding the doctors left and right! Whittney is healing well from the c-section. Congratulations to my brother and his wife.

And yes, the next word of the title is correct, twins!!! Had my first ultra sound on May 20 and there they were, very clearly, two little heads, twin A and twin B. To say I was surprised is beyond an understatement! On top of that they share the same placenta so that means they are identical – Identical!! So two little girls or two little boys, oh my! I have googled identical twins the official answer as to why it happens is “they are unsure”. So I will just add another piece to the amazement list for this entire experience for me. Hopefully I get to learn the sex of the babies about mid-June. Keep your fingers crossed. I want to know!

Made my first trip to Babies R Us today to do some baby product research. With my mom and sister, Laura, in tow I signed up for the registry and became overwhelmed by the choices of bottles, cloth or disposable diapers, breast pumps, teething rings and the list goes on and on and on. I did choose a double stroller and 2 car seats. The double stroller was an important choice because I had to make sure it would fold up small enough to fit in the back of my little Scion xD. Who would have thought that THAT would be one of the biggest deciding factors? WOW

So much to continue to consider especially with twins. There are some things I know for sure, their names are not going to be matching or rhyming, matching clothes will be worn sometimes – maybe – and I am doubly blessed, as long as I live through the blessing of them growing up!


Rollercoaster - June 10, 2010
I have been sitting on writing this entry for awhile. It breaks my heart to write that my beautiful nephew Owen passed on May 30th, 11:57a, in the loving arms of his parents, Whittney and Lucas. As his extended family left the hospital together that day there was such a sense of despair. Lucas and Whittney were not able to bring their baby home. Everything about it was unnatural and unreal.
Owen’s services were beautiful and the room was filled with his extended family along with the loving support of so many of Lucas and Whittney’s friends and co-workers. This young life touched so many, what a blessing.

As a soon to be mother, Owen’s life touched me deeply. This experience has brought me to understand that I am to be grateful for every cry I hear, every diaper I have to change, every inch they grow and every bite of food they take. It will be my gift to see them grow up. I hope to remember this every day of their lives.

My twins, I will see you again on July 12th, when I get to find out if you are boys or girls. Between now and then may I continue to feel you grow.
Owen, Lucas, Whittney I love you.

Fathers Day - June 20, 2010
To my brothers, Josh and Lucas, who gave me the opportunity to be an auntie to one beautiful niece, Caitlin, and three amazing nephews, Logan, Ethan and Owen – To my own father, I would not be who I am without you – To Mike, who gave me the chance to be a mother just when I was beginning to believe it would not happen in this lifetime – Blessings to all who play the role of father on this Father’s Day.

It has been pretty quiet couple of weeks since my last post. Still healing from Owen’s passing, personally and as support (I hope – in any way I can) to my family members. Crying every day at least once a day. Sometimes I can speak of Owen without tears and sometimes I cannot. My nightmares are softening and getting lighter. I talk to my babies every day and they tell me they know Owen, they have met him and they talk to him.

My belly is definitely growing and I have so far to go yet! At 16weeks I have two babies about the size of apples growing inside. I KNOW I have gained weight since my last doctors appt, which is a good thing! I hope my maternity clothes will continue to fit me.

My business has slowed down, I guess due to the 100+ weather and summer time. I am working hard to remind myself that I have and will continue to have everything I need for myself and the babies. The weight of doing it on my own gets overwhelming at times. Don’t get me wrong, I have support and wonderful friends and loving family and yet it comes down to me, my beliefs and making it happen. As I told the babies' father once – “Of course it will work out because I will make it work out. There is no other way.” I remind myself that I was given this gift of being a mother of two and so I have to believe that I will also be shown the way to care for them. This is a blessing.


Blossoming - July 9, 2010
Ok, so it has happened, I have found my first pregnancy stretch mark, on my breast of all places! Blah…….

I swear I have gone from looking chubby to looking pregnant over night! I am without a doubt pregnant, even down to the waddle. I finally gained my first pregnancy weight, 11 lbs in one month! As the doctor said yesterday, women carrying twins (or more) experience pregnancies that move faster with stronger physical effects. So breasts have blossomed, belly has blossomed and ankles have blossomed (lovely swollen ankles). I was gifted with a big bag of maternity clothes from a friend who was pregnant a year ago but I can’t fit most of them. I am too big already!!! Thanks anyway Amanda.
Babies sitting on sciatic nerves – so not right – Ouch! It is getting impossible to sit and see clients all day without a walking or laying down break a couple of times a day. But I do have a friend who knows pregnancy massage, yippee John!

Spent the 4th of July weekend with most of my family in Tucson to celebrate my grandpa’s 90th birthday. It was wonderful to see aunts, uncles and cousins who I have not seen in years! I was so happy that my wonderful brother Lucas and his wife Whittney (Owen’s parents) where able to join us. I know it wasn’t the easiest visit for them since they should have been able to show off their beautiful son Owen to everyone. Owen’s spirit was there.

I am blessed with a loving supportive family and I know it. The father of the babies continues to seem – as a rule – disinterested. I spend most of my time and energy in faith, trusting that they AND I will make it to their birth and beyond but there are times when I am aware of sadness and loneliness, desiring someone to share this with me on a day-to-day basis. The thing is, that even if the father was willing to be here with me everyday, he is not the one I love. He is not the partner I need. I don’t dislike him, truth is I feel no connection to him. But he is the father so I dance the line without clear-cut definitions, expectations (maybe unfair) that are not met and confusion….

But I am going to be the mama of amazing babies! And July 12th I find out their gender and confirm their development. Over the past couple of days I have wondered if maybe there are three in there not just two! lol

Twin to Twin Transfusion Syndrome - July 12, 2010
July 12th, the big day when I got to find out if the babies were boys or girls. The opinions were split 70/30 in favor of girls. That was my guess too. 70% of us were wrong. They are boys! Very obviously boys as both of them showed off their “boy parts”. Two active, inquisitive little boys, oh my….

But that was not the only news I got. This ultra sound was a full one with the measuring of everything on each baby. They found some differences in size and in the amount of fluid in each baby’s sac. All of these things pointed to Twin to Twin Transfusion Syndrome, TTTS. Of course I had never heard of such a thing. It is fairly rare. It only happens about 10% of all identical twin pregnancies, around 2000-3000 a year. (Since I wrote this I have learned that it happens to upwards of 15-20% of identical twin pregnancies, known as mo/mo or mo/di. It has also been known to happen to di/di identical and possibly non-identical twins.) I was supposed to travel to Portland to visit friends and family later that week. When I asked the doctor about going, her response was. “If you miscarry you will do it whether you are here or there so go and enjoy yourself.” Not a response I was impressed by. I chose not to go…. The doctor also recommended that I get an amniocentesis done to check for genetic issues, which I refused. She did recommend a perinatalogist group for me to follow up with.
I went home shaken in shock and fear, getting on the internet I found the www.tttsfoundation.org. I read everything, emailed the foundation and immediately started on the recommended diet of extra protein and iron. I heard back from the foundation and they recommended that I meet with Dr. John Elliott if I could. He was on the TTTS board and actually had come up with the first procedure to help with the syndrome in the 80’s. Before he introduced the procedure of amnio reduction the mortality rate was 90%. His introduction of this procedure dropped it to about 50%. As it turned out Dr Elliott was a doctor with the group I was referred to. I made an appt with him for a couple of days later.

I went in for my appt with Dr Elliott, getting another complete ultra sound and a full sit down discussion on TTTS. Dr Elliott choose to NOT diagnose the boys with TTTS but he did recommend weekly ultra sounds to track their progress because the syndrome can move and change quickly….
So that was it. I found out my babies were boys and I got to enjoy that news for approximately 10 minutes before the words twin to twin transfusion syndrome were said. Well, at least one of the expert doctors on this was in town and was NOT diagnosing them yet. This had to be good, right?

Houston: We Have A Problem - August 5, 2010
July 26th – it is time for another ultra sound – one a week to see if/how the twin to twin transfusion syndrome is progressing. 10am ultrasound now shows a “stuck” baby. One of the boys’ sac, Eli’s, had reduced down to almost nothing. It broke my heart to see his little body all curled up and unable to move. So, it is official. The boys have TTTS and something must be done about it. The doctor sends me directly from the office to the OB Triage at Good Samaritan Hospital in Phoenix.

I am terrified. Trying very hard not to cry, I call my mom in Tucson, let her know what is going on and ask her to drive up and be with me. I drive myself to the hospital. I end up being a direct admit to the hospital and am put in a room in labor and delivery.

The doctors come in to talk about options for the babies. We could do everything from doing nothing, amnio reduction, surgery to selective reduction…… I was also told that if I choose the amnio reduction it would be very unlikely that I could choose surgery later as many surgeons will not do the surgery after an amnio reduction as it can cause complications for the surgery. The surgery is endoscopic laser ablation. The surgeon lasers the blood vessel connections between the two different umbilical cords so that each baby then gets his own blood supply and one cannot take from another. The problem with the surgery is that there is no one in the state of Arizona who does it. I would have to go to Houston or LA and possibly pay for EVERYTHING out of pocket. I did not even consider the surgery as an option and after some quiet time went with the amnio reduction.

The reduction was done that night. The doctors went in with a needle using an ultrasound machine to stay away from the babies and with gravity allow the amniotic fluid to flow out of the largest sac, Nolan’s. The maximum they will remove at one time is 2.5 liters. They have found any more can cause problems with the placenta. So they removed 2.5 liters from Nolan’s sac in the hopes that would give Eli’s space to grow.

I spent the night in the hospital and was released the next morning with another ultrasound scheduled for the 29th. When I went in on the 29th I learned I had another “stuck” baby and that Eli actually had less space than he had before. For it to get worse in 3 days after the reduction, the likely hood that another reduction would make any difference was very small. I was going to lose one or both of my babies without the laser surgery. But what if I had just killed any chance of surgery by doing the reduction??? And, how could I make this happen financially??? I went home and asked for help from everyone and anyone I could think of.

I was sent back to the hospital on the 30th and met with the doctors again. The hospital got in touch with my insurance to start the approval process to have the surgery in Houston and one of the doctors got on the phone with one of the surgeons in Houston and spoke with him directly concerning my case. Suddenly, I was scheduled for surgery in Houston on August 3rd and was told by the surgeon in Houston not to worry about my insurance covering it or not for they had ways of getting it taken care of.

And so it was – I went from thinking I had to consider selective reduction to save one of the babies lives to having a glimmer of hope through the surgery that both boys would make it through. With the financial support of my amazing family, my mom and I were on a plane to Houston on Sunday, August 1st to meet with the doctor on Monday the 2nd for surgery on Tuesday the 3rd.

The doctor’s appt on Monday went well. After a 2.5 hour ultrasound and a 45 minute consult the doctor said I seem to be a good candidate for the surgery. They work out of Texas Children’s Hospital and had done 206 of these surgeries to date. They said their survival stats were the best in the country – 70%-75% of patients go home with both babies, 15%-20% go home with one baby and about 10% lose both babies…..

Surgery was scheduled early morning on Tuesday, August 3rd. I was in the operating room for about 1.5 hours and the surgeon called the surgery a success. There had been 7 connected blood vessels between the two boys, the doctor separated all of them. No complications. The ultra sound to see how the babies were doing was scheduled for the next day. I spent the night in the hospital sucking on lifesaver popsicle praying that both of my boys would make it through this surgery and that I would hear two heart beats at the ultra sound the next day.

I heard them. Two heart beats.
Mom and I flew back home to Phoenix on Thursday the 5th.

Preterm Premature Rupture of Membranes - August 26, 2010
Wednesday, August 25th, 26wks gestation. The boys were doing well after the surgery. Both sacs were almost equal and I could feel both of them moving around inside of me, making me smile. I woke up at 7am after a really uncomfortable night of pseudo sleep and knew something was wrong. I got out of bed quickly as a rush of liquid ran down my legs. I knew without a doubt that my water had just broke. All I could keep saying to myself was “No. No. It’s too soon. No!”

I got dressed and drove myself to Good Sam and checked in to OB triage. Another call to my mom in Tucson asking her to drive up and be with me. To no surprise to me the nurse confirmed that my water had broken and they admitted me to the hospital. They moved me in to labor and delivery and started me on a 48 hour dose of magnesium sulfate to stop any contractions, three rounds of antibiotics to stave off any type of infection and steroid shots to help the boys lungs to develop due to possible delivery.

If you have ever gotten magnesium sulfate you know the hideousness that it is. It works as a muscle relaxer so that at the end of the first day I had to use a “bedside commode” since I had fallen on my way out of the bathroom already. At the end of the second day I could barely lift my hand to eat and could not focus my eyes to save my life. But it did stop any contractions and allowed me to get both shots of steroids to help the boys’ lungs develop.

After that I was moved to an antepartum room for my hospital bed rest. I was going to be in the hospital until I gave birth. They don’t really know why someone’s water will break early. Sometimes it is due to an infection of some type and then after it breaks it is easy for infection to set in since the protection of the amniotic fluid is no longer there. My blood and body never showed any type of infection.

During my stay in the antepartum room the contractions came and went. I had been on nifedipine since August 10th to stop preterm contractions. They did not continue that medication but did give me shots of terbutaline a couple of times to help stop them. My cervix never dilated so they tried to keep a balancing act of keeping me pregnant as long as possible and making sure there was no danger of infection to the boys or I in the process.

The nurses would hook me up to the fetal monitor every evening to hear the babies heart beats for an hour. It was always comforting to hear them but since they were always on the move, especially Nolan, they would have to move and readjust the monitors and sometimes just sit with me and hold them so that they could track. Both heart beats were always strong.

I stayed in antepartum until September 1st. I was then moved back to labor and delivery because the contractions had become strong but since my cervix was not dilated at all I might be needing a c-section soon and the labor and delivery rooms were closer to the operating rooms. The doctors decided to give me another round of magnesium sulfate, this time not necessarily to stop the contractions but because it has shown to offer a some type of protection from any neural problems that could come up for the boys. The second round of magnesium was worse than the first. It stopped the contractions but really messed with me. BUT every day that my boys could stay inside of me was equal to 2-3 days outside of the womb so it really didn’t matter how I felt.

During this stay in the hospital I didn’t have many guests and I did not want them, other than my mom who was always there. My entire focus was keeping these boys safely inside of me. I slept with the two teddy bears that I had received as gifts from my friend John. I held on to them tightly. I talked to the boys, visualizing the three of us together with Divine light shining down upon us keeping us safe and healthy. I prayed for strength, protection and the ability to accept whatever may happen for the higher good of the three of us. This was a very private time for me and my sons. I know that my decision to not have visitors seemed strange but it was what I needed for me to get through this very scary time.

The boys were at 27 wks gestation.

Birth Day - September 4, 2010
As the second round of magnesium sulfate began to wear off and I started to regain my senses the contractions began again. Throughout the afternoon of September 3rd they went from almost unnoticeable to uncomfortable to painful. They ranged from 15 to 6 minutes apart. Finally around 10pm (I remember the time because we were watching MASH on tv) I asked for pain relief, whatever they would give me. They gave me Vicodin and morphine. The doctor came in to check my cervix, not dilated, at all. If I was going to have any babies anytime soon it was not going to happen naturally. Of course I did not WANT to have them any time soon. They were only 27 weeks and 2 days gestational – 13 weeks early….

During all of this I am attached to a monitor to track both babies heartbeats and my contraction levels. So I can hear the boys heartbeats in the back ground. I noticed as we got later into the night the machine would lose one or both of the heartbeats during my contractions. That scared me. I didn’t like not hearing both of my boys hearts. As we got closer to midnight the pain of the contractions was too much for the pain meds they had been giving me and the contractions were inching closer and closer together. My mom had decided to spend the night in the room with me and got the nurse for me. The nurse came in and sat with me to try to track the babies heartbeats and brought more pain meds with her. I tried laying in different positions for my comfort and for easier baby tracking. That didn’t work. My blood oxygen levels started to drop and the babies heart beats, especially Nolan’s started dropping with each contraction sometimes all the way down to 50 a minute (normal for him at that point was around 150-165). It would bounce right back up after the contraction was over but they were coming so quickly there was little rebound time.

The nurse left for a couple of minutes to find page the doctor and the pain got so intense, like nothing I had ever felt. I could not move in response to it because of the baby monitors on my belly. I did not was to dislodge them. It was so much more important that the nurses be able to tell that the babies were okay.

Suddenly the nurse came flying back in the room followed by a couple of other nurses and a doctor I had not met yet. As the doctor walked through the doors she told me I was being moved to an operating room. One of the babies was not tolerating the contractions well and we needed to do an immediate c-section. I heard one of the nurses say heart rate of 15. I knew that had to be my Nolan. He was the one who was head down at the bottom of my uterus. At this point I went into shock and much of what happened is a blur. I suddenly had, what seemed to be, a room full of personnel. One was one my bed, over me attaching and unattaching things. They gave me a shot to stop the contractions and started rolling me out of the room. I saw someone talking to my mom as they took me out. I don’t remember feeling anything as I went into shock. I heard them discussing which OR room they would be using. Was the NICU advised that there were going to be twins? I watched as they put on their OR gowns as they ran and pushed me down the hall. That was when I started to shake.

We came through the doors of the operating room and I moved to the operating table. My body was shaking so badly in shock that my legs were bouncing off of the table, my shoulders were shaking and teeth chattering. I heard the doctor ask for warm blankets and they wrapped me up in them. It slowed my shaking but did not stop it. I tried to focus on my breathing. The doctor who was going to give me the spinal block introduced himself and explained what was going to happen. He asked me if I had any questions and I shook my head numbly. I could hear the nurses in the background counting the number of instruments and tools out loud. I heard the doctor telling them they needed to speed it up. A nurse came up to me and helped me to sit up so that I could get the shot. I will never forget how she put her arms around me to hug and hold me up. She told me to put my head on her shoulder. I did. If I saw her face, I have no memory of it but whoever she was, in that moment, she was an angel to me. I vaguely remember being fearful that the shot would hurt. Ha! I think I was in such shock they could have done the c-section right then and there and I would not have felt it. Instantly I felt a rush of warmth shoot down from my rib cage down to my toes. Relief, the shaking stopped.
Somewhere in all this surgery prep my mom showed up in her scrubs. She was going to be there with me. I had no idea. The anesthesiologist introduced himself and he and the doctor explained what was going to happen next during every step of the surgery. I felt tugging and pulling as they cleaned my belly. Once they started it seemed almost immediately that Nolan was out. I felt a release of pressure. No crying. At this point I was VERY thankful that I had spoken with one of the neonatalogists about a week earlier. He had told me that in c-sections for premature births the babies rarely ever cried so I was not to worry if I did not hear any cries after birth. He also told me that each baby would have his own doctor and nurse to care for it the minute it was out of my body. I did hear them call his birth time of 1:55am. I looked at the clock and saw they were right. Soon after that someone came and got my mom so that she could see Nolan. I closed my eyes. I was overwhelmed. I was so filled with emotions that I was effectively numb. My mom later told me that Nolan was blue when he came out. His initial apgar score was 2 within the first minute of life (zero is the lowest)

Now it was time for Eli to be born. I heard the doctor saying that she could not find him. (Eli spent most of the pregnancy up near my rib cage on my right side.) Then I heard grunting. It was a strange thing to hear coming from the doctor. She told the anesthesiologist that she needed something to stop the contractions. She said it twice and then a couple of minutes later Eli was born. I learned later that the contractions had been sucking him deeper into my uterus and they had to do a T-incision to get to him. The grunting I heard came from the doctor as she literally had to use all of her strength to get a hold of Eli and pull him out. Again, no cry. Birth time 2:00am.

I think, somewhere along the way someone told me both babies were fine. They started to stitch me up and the neonatologists brought both boys past me so that I could see them as they left the OR to go to the NICU. Both of them had breathing apparatuses on so it was difficult to see them. But they were there and they were tiny. My mom went with them. It took about a half hour to close me up. On my way out the OR to recovery the doctor told me that I had needed a T- incision so if I was going to have anymore children I would have to have a c-section, vaginal delivery was not an option. I nodded. Had I even spoken a word during this whole experience? I really don’t know.
Nolan and Eli, my babies, were born alive, both of them. They were 13 weeks early and they were going to face many challenges in growing and developing. September 4, 2010 – Birth Day – I couldn’t wait to see them.

Tuesday, December 31, 2013

25 Events of 2013 - In No Particular Order

    1.       We got Nolan’s official diagnosis in May – severe autism.
    2.       A beautiful friend of mine died unexpectedly in his sleep in February – I miss you John.
    3.       Finally had the finances to do some of the things I had been wanting to do in Eli’s name since he died in 2010. Every single penny and every single moment was worth it. 
    4.       I became a published author again! Thanks Tova!  
    5.       Police, CPS, family court and lawyer’s fees – oh my……
    6.       Nolan started developmental preschool. He is absolutely thriving there.
    7.       Helped support some fellow baby loss moms in connecting with their child on the other side, on their own.
    8.       Started back to college to finish my degree. My sister was my inspiration.
    9.       I have heard my little man’s voice. Nolan finally picked up the first sign. We had been working on it for months and he hasn’t looked back. He’s now up to 5 and starting to sing the alphabet.
   10.    I didn’t get to see my niece and nephews in Tucson as much as I wanted to this year. I miss them.
   11.    Took HUGE steps in healing old wounds, forgiveness of myself and others, reclaiming my power and remembering to trust in the Universe.
   12.    Months and months and months of being up 2-4 hours in the middle of the night with a little boy who doesn't sleep well.
   13.    Amazing moments of cuddling, silliness and love with my little one in those 2-4 hours of middle of the night awakeness.
   14.    Knowing I am stronger than I ever thought I was, and I have always thought I was pretty strong.
   15.    Finally coming to the point of starting to create holiday traditions for my little family. It has been a hard road.
   16.    Understanding that the new year doesn’t move me further away from Eli. He comes with us.
   17.    My little man sat on Santa’s lap!
   18.    The loss of some old friendships.
   19.    The gain of some new friendships.
   20.    Knowing how lucky I am to have my client base, some who have been with me for years now and they always recommend me to others.
   21.    Being acknowledged as a spiritual mentor to a wildly successful, beautiful and spirited young woman.
   22.    Being told yesterday that I do not look anywhere near 45. I feel like the past 4 years have aged me more than any other time in my life. 
   23.    I finished Eli’s picture book and got his beautiful Molly Bear.
   24.    I am honored to continue to be a faculty member at Southwest Institute of Healing Arts.
   25.    Remembering in all of this that I choose what it means. And I know it means I am blessed.








Tuesday, December 18, 2012

A Month of Small Celebrations - December 18


Small Celebration

Celebrating traffic delays and highway closures on a Monday morning.  I had a 9am job interview this Monday. It was only about 13 miles away but in trying to be the organized planner I left my house around 8am so that I could make sure to give myself the time I might need to find a building that, according to the person I was meeting with, was hard to find. So I leave my house and get on the freeway. As I am waiting for the on ramp light to turn green for me I notice that traffic is starting to slow down on the freeway in front of me. By the time I actually get on the freeway it is almost at a dead stop. Nothing I can do now but sit there and try to get off at the next exit. That next exit is two miles down the road. That two miles ends up taking me an hour to get to. At 8:30am I called the person I was meeting with to let her know I would be late and why. Her next appointment is 10am. She gave me the choice of rescheduling or getting there as soon as I could. I went with getting there as soon as I could. I finally get off of the freeway at 9am and within 30 minutes I am walking through the door. During my drive I kept hoping that I would be shown why this delay had to happen today and that it wouldn't negatively effect my chances for the job. When I got to the office I was only able to meet with the person who was to interview me for about 15 minutes.

But

After that I was able to step into another office and have a 45 minute conversation with the owner of the business. We clicked  and connected. And I am happy to say that I was offered the job this afternoon. I really, truly, completely believe that my opportunity to talk with the owner of the business like that is what got me the job. Had I left my house 5 minutes earlier I would have been past the accident that caused the freeway closing or a possibly even a part of it. Had I left 5 minutes later I would have seen the freeway was closed and would not have gotten on it and probably would have gotten to the interview on time and not had the one on one time with the owner.  Interesting....  :)

So, I have been hired as a Program Coordinator at "Mad Science". They create after school programs and day camps for kids that focus on science projects and experiments. The schedule has flexibility with the perfect hours to fit in with my life. My first day of work is Thursday. Another opportunity in the educational field!  I am ready!




Saturday, December 8, 2012

A Month of Small Celebrations - December 8


Small Celebration

This year's Christmas cards where delivered today. Since my boys were born I have been doing a photo card. This year I found a card that I loved. It was the first one I saw when I went on the Vista Print web site.
Peace, Love and Joy
Peace is my Eli. I know that peace is in his soul. I feel that peace radiate from him when his presence fills my space, my mind.
Love is me. I remember when I understood that to Love was the reason for my life. My boys have taught me more about love than I could have ever imagined. I know they were meant to be my sons. And I was meant to be their mother.
Joy is my Nolan. His existence in my life brings me unmitigated joy. It thrills me when he expresses his absolute joy. Just chasing around the house saying "mommy's gonna get you!" brings out his joy. The smile on his face could light up Phoenix for a month.
And finally, I decided on the first Christmas of my family that every Christmas card would have a star on it, somewhere. It would be my way of knowing that even though Eli may not be in the picture or sign his name on the card, he would be there. My son who plays amongst the stars. 

I love my Christmas cards this year.



Tuesday, December 4, 2012

A Month of Small Celebrations - December 4

Small Celebration

Today I celebrate my clients. I have made a number of changes in where and when I see my clients since I opened up shop in 2009. There were many that I lost with all the time I had to take off due to the pregnancy, my boys and my health challenges. And some others left when I decided to work only via the phone or skype. But the clients who have made these changes with me I am so thrilled to have. I had a powerful client session today and it let me experience again the joy I feel when I am able to support someone in their personal growth, awareness and transformation. It helps to remind me that I am good at that. And I feel as though I am fulfilling a deeper purpose in my life while I assist someone in fulfilling theirs. There is no more beautiful feeling in my professional life than when I know I have done this. 

This is one of my work spaces. 
:)


Thursday, September 27, 2012

Sensory Disorders, Autism Evaluation and "I am right. You are wrong."


Yesterday was an interesting day. I want to talk about it but before I do, here is some back story. For those of you who have been following my blog you noticed that I only posted once in July and then not at all in August. There were some things going on with Nolan that I needed to get a grasp on before I would talk about it.

In June I took Nolan to his pediatrician to talk about the fact that he was not talking, at all, not even mama or no! At this point he was almost 21 months, 18 adjusted (due to his premature birth). By all standards he was behind in speech. At that point I had also noticed that sitting still and reading a book was almost impossible and he had started to spin when he would get stressed out. He did not always respond to his name and would not look at people he did not know in the eyes. The doctor referred us to Early Intervention and after SIX different evaluations by eight different people I was advised that he was significantly delayed in speech with moderate cognitive delays. Now I know that many of the people evaluating him did not see the him the way I see him because he was stressed out with them in his home, but to say that I was heart broken would be an understatement. I know his intelligence. I see it daily.

Fast forward a couple of months and Nolan is now getting weekly therapy appointments with a speech and occupational therapist and it has been discussed that he has some sensory processing disorders, mixed to be exact. He seeks visual and tactile sensory input AND he can get overwhelmed and over sensitized by the input he seeks.  So it is a constant balancing act to keep him stimulated and protect him from getting over stimulated. That is what the occupational therapist helps me to understand. She helps me to find him appropriate and satisfying sensory play. Here is the web site on it if you would like more info on sensory processing disorders http://www.sinetwork.org/index.html. The speech therapist helps him create/build his communication skills. I also started with the alternative therapy NAET, which I will talk more about later but here is the website if you want more info http://naet.com/Patients/patientshome.aspx.

And finally Nolan is scheduled next Friday with his first appointment with a developmental pediatrician for Autism evaluation. Which I will talk more about, again, at another time.

So I was cruising the internet at 2am yesterday morning because I could not sleep. Nolan was awake and I had a bitch of a migraine. I was looking up info on Autism and twins, ID or fraternal.  I thought I found a study that said identical twins are diagnosed with Autism more often then fraternal twins or singletons. And I asked if anyone else on one of the TTTS facebook pages I am on had ever heard of this. It started a long discussion about Autism, which happens almost anytime it is mentioned since there are many different people who believe there are many different causes, including that it is not a real diagnosis. Anyway, I got into a disagreement with another TTTS mom and in the end I could not find the link of the study I thought I had seen. I got snappy with her and ended up feeling let down with myself. She expressed that she needed to believe that Autism was genetic because that made it less scary to other TTTS parents. I learned that I needed to believe that Autism was due, at least partially, to environmental causes because then I felt like I had some control over it. I well know that it is our attachment to being right, or thinking we have control can lead us to great pain in our lives. And I know that I am very attached to this, right now at least.

What hit me after much of the discussion had ended was that I was feeling out of control. That there was one more thing to deal with that I did not choose to happen, especially not to one of my sons. I was fighting to believe that there was something I could do to change or alter the possibility of an Autism diagnosis for my beautiful Super Hero Nolan and that caused me to fight with someone else over something as silly as what causes Autism. Don't get me wrong, the effects and challenges of the symptoms of Autism are not silly but to fight with someone about why it occurs or even what it is, THAT is silly. But we were both attached to what we needed to believe to keep us feeling safe and empowered. I got sucked into the game.

Just when I think I have healed from many of the recent things in my life, something else happens and it takes me back to the beginning of my pregnancy. There has been little breathing room, little pause, little quiet and very little adjustment time between. And then when I get attached to an outcome, when I need to be right, like with the Autism discussion, I get angry, frustrated, scared, unhappy and rude. I am continually being given the opportunity to detach in the most intimate and important parts of my life, my and my son's health and well being. I am working on it Universe. I am working on it. I understand that am being pushed to remember that my power DOES NOT come from fighting with someone about their beliefs or perceptions but it comes from my willingness to take what I am given and create something new. That is my true spiritual strength. And - dear Universe, if you would be willing to give me some moments of calm in between, it would be beautiful.


I will end this post with a moment of calm I found between Tobey, the family cat, and Nolan.
I feel very lucky to have caught this image.

PS - This is a rewrite of the "Random Events Overload" post. I deleted that post after realizing that it wasn't really saying what I really wanted to say. :)

Monday, September 3, 2012

Letter To My Boys - Second Birthday

In three hours it will be officially Nolan's 2nd birthday. Five minutes later it will be Eli's 2nd birthday.

I know I haven't written much lately. As I mentioned in my last post there were some changes happening that, to put it plainly, I didn't know what to say. I will talk about those in another post. But I knew that the 2nd birthday of my beautiful little boys and my letters to them was the perfect time to step back into my blog.

So here goes!

To My Amazing Nolan -
What a year it has been. There is no one on this earth who would look at you now and know that you started out fighting TTTS, born 13 weeks early and spent almost 3 months in the hospital with two surgeries under your belt before you were 6 months old. This past year, you moved from standing up with the help of the furniture to running around with excitement and pure joy. You graduated from your need for thickened formula/milk and are now eating like an adult. Well, almost, if you know of any adults who like to rub mashed up banana chunks in their hair or sometimes the random piece of hot dog. I am guessing it is good for your hair because you have beautiful hair.  You are still careful with your words and haven't stepped out to claim any one word as your official first word but boy can you let me know what you want. With the way that you read and study things, sometimes I think you will actually read me a book the first time you talk. :) You have become a fan of the Super Why cartoon on PBS. Even giving a kiss to Pig and Red Riding Hood sometimes when they come on. You have good taste - both are very cute.  :)  You have learned to be friends with Tobey the cat, to Tobey's relief, and understand the term "gentle hands" when you pet him. You love applause and clapping, for anyone, anytime, so filled with joy, smiling a huge smile and clapping away.

You have perfected the art of throwing yourself down on the floor so you have a soft landing during your rare 5-10 second tantrums. And have even been known to laugh at yourself while throwing those tantrums. You have also perfected the art of throwing a ball, actually two balls at once! Your intuitive sense of how electronics work and what buttons do what amazes and maybe even scares me sometimes. And you still shine your light brightly. I see the looks that children and adults give you when they pass by, smiling, waving, little girls coming up to try and kiss you. Oh yeah, that Venus/Mars conjunction in Libra is showing up already! (Astrology talk for charming.)

You got sick for the first time and the second time and the third time this past year but you are so strong that the first time was only for 48hrs and the third time only happened because your immune system was down from the 2nd time.  :0)  You saw a chiropractor and he told me that you had to be one of the strongest little boys he had ever worked on. PS - you charmed him too.

What I have learned from you -
I could spend all day, every day with you and I would still want more. I love that "Nolan's mommy" is one of the hats I wear in my life, one of the most important ones in my life.  Being responsible for you makes me want to do more and do better for you, for us. You have shown me that being present in the moment is one of the best things I can do for both of us. You will always have my heart, even as you grow up, find your own way and make your own life. It is my love for you that has gotten me up and moving every single day this year, with a back injury from an accident and other health issues. There were times before you and your brother when I would hide under the covers to just get away for awhile. I don't do that any more. I get up and make a life for us. Not because I have to but because you have worked so damn hard to be this wonderful child that you are.  You are making it past your challenges and difficulties to be here now, you deserve at least the same from me. You teach me about love every day with every breath, every smile, every tear.
I love you my shining little boy.


To My Amazing Eli -
All I have to do is say your name and I am filled with your presence. This communication and connection between us is natural and real. I love that you ride in the car with me and we talk then. It is that quiet time when I feel close to you. And then just as confirmation you make yourself available to my friends who are open to hearing and feeling you.  People respond to your spirit as strongly as people respond to Nolan.

I know that it is you who is working on the other side to help bring the parents of those children to me. The children who let me know why they do what they do and what their parents need to understand to help them cope and function in this earthly life. And these children see me. Your life and death helped me to step into that part of my work. You also help me in connecting with those who have passed. You are my bridge and I am so thankful.

As I started standing up and speaking to groups again, it was your spirit that came to me. I felt your love and a couple of times simply giggled in joy at the feel of you.  You have helped me, made me Love Out Loud and See Love in all things. I am honored to continue to feel and share your love in my heart with as many as I can.  I will continue acts of service and kindness, large and small, in your name and your memory.

And I still cry tears because this human mama still wishes to see your eyes, hear your laugh, kiss your cheeks and hold you close. I miss you in the physical. It is one of my greatest hopes that I will again get to hold you close to me and know that it is you that I am holding and that you will know me.

Your birthday party is on the 9th. Keep an eye out for those balloons we will be sending to you. They will have notes of love and birthday wishes all over them, from some of those people you have touched. Your name will be on the birthday cake too. Nolan and I will blow out your candle for you. :)

Eli, my star angel. "Some people only dream of angels. I held one in my arms."
"A luminous light remains where a beautiful soul has passed." Thank you for lighting my way through my grief at your departure.

I love you heart and soul.
And PS -
Thank you for entertaining Nolan when he wakes up in the middle of the night. I know, I hear him laughing. :)

To both of my boys -
You continue to do your magic in my life as I knew you would. Just being here, being who and how you are is a gift of love, growth, service, joy, happiness and patience.  I really don't know if things "happen for a reason" or if there is a "great plan" but I know that I will continue to find the perfection of having you both as my sons for the rest of my life. I know I am blessed to have two powerful spiritual beings in my life, as my sons. I am so grateful for you. It is my job as your mother to create places on this earth for your light to shine brightly and I will continue to do that with great love.




Saturday, December 31, 2011

New Years Eve 2011

Another calendar year will soon have passed since I said goodbye to my baby Eli. I have his flameless candle going in his cabinet in Nolan's room right now. I turn it on at night during those important times when his absence is so poignant - like the holidays - like now.

The amazing changes Nolan has gone through in 2011 have been a joy to be a part of. He's 26lbs now, taking steps on his own, eating table food. He made it through his first Phoenix summer, in a helmet no less, played with his first sparklers, had is first birthday party, had his first stomach flu and graduated to having his own room. You would never guess that he was born 13 weeks early and at total of 2lbs 4oz, just like his brother just 16 months ago.

In my last post I said I was trying to remember what I believed in -
I remembered the next day -
LOVE.
Once again the 10 day countdown to 2012 asked the right question at the right time. I had been asking for guidance since the accident, feeling so overwhelmed and not understanding, and as it always happens - the questions I needed to guide me to the answers I was looking for just popped up
My #1 wish for the New Year is....
My response -

Peace for all living creatures on earth with everyone knowing that they are loved - that they ARE love.

Simple but truly my desire.

About 6-7 years ago I went through a couple of self-awareness programs and I learned many things about myself but one that became crystal clear was that if I were to come to the end of this life and feel like I did not love enough, that I could have loved more but chose not to I would be heart broken.

And my understanding of this love may be different than others. I DO NOT mean allowing people to harm me or remaining in places that are hurtful. I mean to choose not to harm others intentionally for any reason, to live in compassion and passion, chosing to love me because I deserve it as much as anyone else, saying MY truth for me, owning it even if others may not agree or like me for it.

I believe that the intelligence, the energy, in the world that literally holds things together (talking physics - the stuff between matter) is love - that is it. A love that is far beyond the human love we often talk about "I love my new phone." The love that I felt after Eli died. I couldn't rely on the normal expressions, holding him, feeding him, like other mothers with their babies - I had to broaden my definition of love again so that I could feel him in the breeze, in the feel of the sun, see him in the sky at night. THAT love is my wish for myself and for every other living being on this earth.

I have decided to be part of a decluttering group for January. So looking forward to clearing out my garage and holding a garage sale the beginning of February and all the proceeds will be going to the March of Dimes. Just need my back and neck to hold up to their part of the deal.

I have also decided to choose one conscious raising item to do once a day for the month of January. Placing my focus on making sure I do something every day to invite more good, more joy, more awareness, more prosperity, more LOVE expressed in my life, my sons life and on this earth. I will be posting them on my facebook page Rediscovering Your Light


Happy New Year

May you be aware of the magic at work in your life in every moment.