Showing posts with label birthday. Show all posts
Showing posts with label birthday. Show all posts

Friday, March 18, 2016

Another Birthday

Yes, another birthday, this one is mine though, not the boys. March 14th, 19.....

My birthdays are quiet affairs these days, getting together with family, and LOTS of birthday wishes on social media! I mean, it really was wonderful. I especially love the ones with the images and those with the extra sentiments. I am just a sucker for those things, always have been. I used to be on TOP of getting birthday cards out through snail mail, back in the day... But then I was not a single mom, nor mom at all, nor was I busy with all the big important mom stuff I do.

There were a lot of things I used to do, back in the day that I don't do anymore. Some of them were easy to give up, professional pedicures. They weren't that important. Some of them were hard to give up, fancy coffee drinks. Not something I needed but something that I wanted. And then there are those things that I never in a million years wanted to give up or ever even considered I would give up and yet, here I am... Birthdays do that - help you think of these things....

I started a couple of daily mindful practices the beginning of this year including; reading something inspirational or that I learn from, writing down something I am grateful for and outlining what my daily goals are, based on my son's and my schedule for the day... In this practice some things have happened....

I have completely read two books! One of the things I had given up, though not intentionally,  just due to time limitations, was reading for fun. The books I like to read for fun are usually those that teach me something, so my daily reading mindfulness practice has fit right in. I read two books at 5 minutes a day since January 1st. I have always said that everyone can find 5 minutes in a day to do something they enjoy and it seems like that thought may have been right....

Getting a good night's sleep is also something I gave up. I truly had no idea that I could go on such limited sleep for years and still function.... Though I have to say that the functioning had gone down hill lately as it became just too much. Thankfully we seemed to have turned a corner, at least for now. My son is able to sleep through the night more times than not in a week. I have also began to put a priority on my own bed time and am planning on creating a bed time routine for myself! Oh how wonderfully old of me!

Anyway, I mentioned getting a good night's sleep. Well, "waking up" after only sleeping 2-3 hours for the 10th, 20th plus, night in a row makes it very, very, VERY hard to come up with something to be grateful for, unless it is a nap or coffee in my near future.... While I have always thought of myself as a positive person, it seems as though my positivity had become much easier to experience for my clients, students, friends/family. For myself I focused on what needed to be done next. It's my pragmatic side coming out. My To Do List has subcategories with other To Do Lists attached. I am serious, truly... Working to recreate your own business, help run a non profit, finish up yoga teacher training AND managing my son's 25 hours a week of therapy/school, requires my To Do Lists to have To Do Lists right now... And it has been my new mindfulness practice of writing down even one thing to be grateful for, right now, has kept me present to the beauty of now.

There is more I could write about but I will leave it at this, my little mindfulness practices I have been practicing for two and half months are working.... Those small daily changes I have made in my life are helping to clear my head, organize my thoughts, empower my spirit and strengthen my body.

Everyone has 5 minutes to do something they love every day. I have found it to be true. Now that I have it, I hope I don't let it go. It's good for me.... And it only took until my 48th birthday to see that.



And so it was. Little bits of light. Happy birthday to me!
Here's to always learning in our life -  
even when we think, or especially when we think, we should know better.

Tuesday, September 15, 2015

Your Children are Not Your Children

"Your children are not your children.
They are the sons and daughters of Life's longing for itself.
They come through you but not from you,
And though they are with you yet they belong not to you.
You may give them your love but not your thoughts,
For they have their own thoughts.
You may house their bodies but not their souls,
For their souls dwell in the house of tomorrow,
which you cannot visit, not even in your dreams.
You may strive to be like them,
but seek not to make them like you.
For life goes not backward nor tarries with yesterday." - Kahil Gibran

Eli, your short life is not what I would have chosen for you or me or Nolan. Not even close. I would have chosen for you a quiet, joyful childhood, growing up with your brother. You would have experienced the regular childhood and adult experiences of laughter and tears, failure and success, happiness, creativity, friendship and being in love and having your heart broken - And you would have used all of those experiences as a powerful force of love to change the world.......

But I now know that you had your own contract and agreement with Life. I was right that your spirit was meant to be a force love on this earth but in a very different way. Your spirit lives through in Nolan and helps him take on and conquer the challenges in his journey in Life. You are in his smile and laughter and in his tears at night when he has cried out for you. When he says your name and points to your picture. I know he knows you.

Your spirit lives through me. In everything I do, everything I am - mothering your brother, teaching my students, working with my clients, caring for myself, my relationships with everyone. My goals and intentions for my life were set in movement with the birth of you and your brother and clarified with your death 11 days later. I work to be a force of love on this earth because of Nolan and because of you. Every day I unwrap more gifts from you and your short time on this earth. Your spirit is eternal and while my mama's heart still desires to hold your hand, hug you, kiss your face, hear your laugh, see you play with your brother, I know that you are here with me and that love continues on.

"A luminous light remains where a beautiful soul has passed."
You left this earth five years ago today. Your light is just as strong.

Saturday, September 6, 2014

Twin pregnancy, TTTS Diagnosis and Premature Birth


March 24, 2010
This is the day that changed my life. The day I found out I was pregnant. I was in such shock I called my friend Tracy and actually sent her a picture of my pregnancy test just to make sure I was seeing it correctly. Her response – “I suck at math but I see two pink lines.” And so that was it. I was single, 42 years old and pregnant with my first child. WOW! On top of that I was self-employed without insurance. But from the moment I knew I was pregnant I knew that this baby was mine and I would keep it. There was no other option for me and so I cried and cried and cried. I cried in wonderment, shock, fear, grief, love and gratitude. I took the 2nd pregnancy test at 2am, just to confirm. Yup, still preggers…. How the hell was I going to do this?

The first person to tell was the father of the baby, M. He was not expecting this and he needed to know. It was quiet shock that sat in the room for a long time after I said the words. What was going to happen with us? We were not anywhere close to any commitment bigger than dating. The evening ended with neither of us knowing anything other than both of our lives were changing.

After telling M I told my friend John. I went to work at the store were I see my clients and John was there. I adore John, he is like the older brother I never had. I knew that I was never going to be able to make it through the day without talking to him and if I talked to him he would know something was up. So I sat down to chat, he said something about the fact that I looked freaked out. I agreed that I was freaked out and went on to give him the news. I started to cry as I said it. Even saying the words brought on overwhelming emotion. I didn’t know what I felt but boy I felt it! John asked me if I would be keeping it. I knew the answer to that one. Oh, yes, this one was mine. John called himself Uncle John and it seemed quite fitting.

The next day I went to Planned Parenthood and had another pregnancy test, the third one. Oh, imagine that, still pregnant. They gave me a tentative due date, 12/1/10 and they gave me a signed document, the size of a prescription, confirming my pregnancy. I told them I didn’t need this and the lady looked at me and smiled saying “If you don’t have insurance, the state is going to require this for you to apply for insurance.” Guess that means I will be applying for AHCCCS – Arizona Health Care Cost Containment Services. They put a rush on expectant moms, only 20 work days before a response.


Telling the Family - April 13, 2010
As it magically worked out, my mom was planning a trip up from Tucson for the weekend, the perfect time to tell her face to face. And so I did. I could barely keep it in. I had to tell her and tell her immediately. I don’t even know if I waited 10 minutes after she got here. She responded quietly but I saw the smile on her face. I saw happiness. I cried when I told her too. Still not knowing how I felt but definitely feeling something. She shared some stories from her pregnancies as we went to Target to buy disposable rubber gloves for when I clean out the cat litter box. We discussed how to take them off correctly. Pulling them off inside out is how you do it, in case you did not know. It’s an old trick I learned as a flight attendant.

Next on the list was my brother Lucas and his wife Whittney. They are expecting their first-born, Owen, the last week of May. It had been a difficult pregnancy for them. Their son was diagnosed with Congenital Diaphragmatic Hernia. That is when the baby’s diaphragm does not develop completely and abdominal organs can be pushed up into the chest cavity limiting the development of heart and lungs. I have seen Owen in good, strong health. His spirit visited me telling me he was going to be ok. I have seen him in perfect health since then. I was excited to tell Lucas and Whittney because now their son was going to have a cousin very close to him in age. What fun! – Anyway, they were excited and very sweet both saying that I would be an amazing mom. I hope they are right.
And then came my brother Josh and his wife Natalie. I told Natalie first, on the phone,she screamed (softly) and told me I had to Josh right now. She put him on the phone and watched as I told him. When she could tell I had told him she began her happy dance in the living room. They had been the only ones in my family who had children and they wanted their three to have some Tomczyk cousins. They had their first at age 21 and here I am having my first at age 42. I am still not sure which age is more challenging……

And next to tell was my sister, Laura, in North Carolina. I called, we chatted for a bit and then I let go with my news. She had lots of questions, like I knew she would. It was a great conversation and a good way to make sure that she will make it to AZ for Christmas with the family!
My aunties (dad’s sisters) and uncle Chuck know along with Bev, the wonderful woman my dad spent the last part of his life with. Everyone has only had words of support and love. You know who you are. Thank you!

I know what a gift my family is to me. I am sure that my baby’s various aunties and uncles (blood relation or not) will play such a big part in his/her life. Both of us are lucky, lucky people.

Kidney Bean: 8 Weeks - April 21, 2010
They say that the baby is the size of a kidney bean this week. How could something so small wreak such havoc on my adult body? I imagine I will be asking this question even more often as the baby continues to grow.

What I have learned about eating – when I feel nauseous I need to eat. The baby wants healthy food, wants me to eat vegetarian, doesn’t like food with a bunch of different ingredients and does NOT like ice cream. Just the thought of eating ice cream again makes me feel sick. I tell you though; I cannot get enough pickles, chips or even french fries!!!!! – craziness!

I got some good news on Monday; I have been accepted by AHCCCS (Arizona Health Care Cost Containment System). I am so thankful knowing that I can get the health care that I might need as a pregnant woman. I have checked into different hospitals and it looks like Desert Banner is my choice. They offer alternate therapies and even a birthing tub. I LOVE the idea of a birthing tub and giving birth in water! Seems fitting for a Pisces woman like me (the zodiac sign of the fish!)

I have been working 6 days a week most weeks and I need to change that – too tired! It is time for me to start figuring out how to make more money with fewer hours. Everyone wants to know how to do that, huh? I will be making some changes to my schedule in the next couple of weeks.

Being pregnant has raised the bar on what is acceptable in my life and what is not. Some things that were acceptable to me as a single woman now have no place in my life since I am now responsible for someone else. These things include how/what I eat, how I spend my time, the people in my life. I am not sure why it took a pregnancy to put a higher value on myself but it did and I am going with it. If something is not good enough for my baby it is not good enough for me.


Single Parent -April 27, 2010
Some big things happened this past week.
I made my first Dr. appt for the first week of May! I am looking forward to it.
I changed my schedule and no longer work on Sundays. I always had clients on Sundays but the numbers were low. I will still be available at the same location on Wed-Fri for them. It will be good to have that extra day off.

The baby and I got our first gift from Auntie Angie! It is a wonderful stuffed toy and a hooded towel in the gender neutral color of green. We are sooo lucky and grateful.
The baby really feels like a girl to me. I can’t wait to find out.

It seems I will be a single parent, very single parent. I had a difficult conversation with the baby’s father, M, to let him know that I do not have romantic feelings for him anymore. I had been feeling this for awhile but put off saying anything. I knew it would hurt him and yet it was true so I could not act as though it wasn’t. I was not going to be dishonest. I told him that I want to work this out as friends and work together as parents. His response was to let me know that he is not sure he wanted anything to do with this now. He ended the conversation with “I don’t know if I will call you again.” I am sad for him and what he will miss out. I am angry with myself for being involved with someone who could do this. Many mixed emotions… I do understand that he could have spoken in anger with the intention to say things to hurt me. Time will tell. I am not making any long term decisions about him but I know that right now I am not spending any more of my time or my energy on him. Focus is growing a healthy baby and building what we need. Time to step up, meditate, connect with my divine support system and take no prisoners – Necessity is the mother of invention – So let’s invent!

Miracle, a Heart Beat and Mothers Day - May 11, 2010
After almost a week in the hospital, Whittney is still pregnant and Owen continues to grow and develop as his parents get the world ready for his birth. I saw the beauty of your love, courage and strength. My nephew, Owen, chose his parents well.

I heard my baby’s heart beat on Friday, a very powerful sound, hearing a heart beat coming from your body and it is not your heart! WOW – I am not just tired, fat and nauseous – I am pregnant too!!
The doctor also mentioned that she was concerned about my thyroid. It is a little swollen and my thyroid is under active so I am going in for a thyroid ultra sound next week. They will also be checking my blood. I understand that a thyroid problem can cause problems with pregnancy so as much as I do not want to, I may need to go on medication for it. Maybe my tiredness is related to this….

My baby ultra sound is scheduled for May 24th so pictures will be forth coming!
Reminder to self – Never, never, never have 3 glasses of lemonade for lunch – at least not without Tums very handy for the heartburn I just created!

I had my “first” mother’s day this weekend. Thank you to all of you who thought of me on this day. I really thought that I would never experience this in this lifetime. In honor of mother’s day I went shopping and bought some maternity pants and a new bra. They are my friends!!!!

Birth, Surgeries, Twins and Babies R Us - May 27, 2010
It has been quite a time since I have written and as you can see from the title much has happened.
My nephew Owen was born via c-section Monday, May 24th. Welcome to the world my dear! He had his diaphragmatic hernia surgery on Wednesday morning and did amazingly well. He is currently on a heart/lung bypass machine and will continue to be for the next 10-14 days. Keep healing Owen as your lungs develop and grow and keep astounding the doctors left and right! Whittney is healing well from the c-section. Congratulations to my brother and his wife.

And yes, the next word of the title is correct, twins!!! Had my first ultra sound on May 20 and there they were, very clearly, two little heads, twin A and twin B. To say I was surprised is beyond an understatement! On top of that they share the same placenta so that means they are identical – Identical!! So two little girls or two little boys, oh my! I have googled identical twins the official answer as to why it happens is “they are unsure”. So I will just add another piece to the amazement list for this entire experience for me. Hopefully I get to learn the sex of the babies about mid-June. Keep your fingers crossed. I want to know!

Made my first trip to Babies R Us today to do some baby product research. With my mom and sister, Laura, in tow I signed up for the registry and became overwhelmed by the choices of bottles, cloth or disposable diapers, breast pumps, teething rings and the list goes on and on and on. I did choose a double stroller and 2 car seats. The double stroller was an important choice because I had to make sure it would fold up small enough to fit in the back of my little Scion xD. Who would have thought that THAT would be one of the biggest deciding factors? WOW

So much to continue to consider especially with twins. There are some things I know for sure, their names are not going to be matching or rhyming, matching clothes will be worn sometimes – maybe – and I am doubly blessed, as long as I live through the blessing of them growing up!


Rollercoaster - June 10, 2010
I have been sitting on writing this entry for awhile. It breaks my heart to write that my beautiful nephew Owen passed on May 30th, 11:57a, in the loving arms of his parents, Whittney and Lucas. As his extended family left the hospital together that day there was such a sense of despair. Lucas and Whittney were not able to bring their baby home. Everything about it was unnatural and unreal.
Owen’s services were beautiful and the room was filled with his extended family along with the loving support of so many of Lucas and Whittney’s friends and co-workers. This young life touched so many, what a blessing.

As a soon to be mother, Owen’s life touched me deeply. This experience has brought me to understand that I am to be grateful for every cry I hear, every diaper I have to change, every inch they grow and every bite of food they take. It will be my gift to see them grow up. I hope to remember this every day of their lives.

My twins, I will see you again on July 12th, when I get to find out if you are boys or girls. Between now and then may I continue to feel you grow.
Owen, Lucas, Whittney I love you.

Fathers Day - June 20, 2010
To my brothers, Josh and Lucas, who gave me the opportunity to be an auntie to one beautiful niece, Caitlin, and three amazing nephews, Logan, Ethan and Owen – To my own father, I would not be who I am without you – To Mike, who gave me the chance to be a mother just when I was beginning to believe it would not happen in this lifetime – Blessings to all who play the role of father on this Father’s Day.

It has been pretty quiet couple of weeks since my last post. Still healing from Owen’s passing, personally and as support (I hope – in any way I can) to my family members. Crying every day at least once a day. Sometimes I can speak of Owen without tears and sometimes I cannot. My nightmares are softening and getting lighter. I talk to my babies every day and they tell me they know Owen, they have met him and they talk to him.

My belly is definitely growing and I have so far to go yet! At 16weeks I have two babies about the size of apples growing inside. I KNOW I have gained weight since my last doctors appt, which is a good thing! I hope my maternity clothes will continue to fit me.

My business has slowed down, I guess due to the 100+ weather and summer time. I am working hard to remind myself that I have and will continue to have everything I need for myself and the babies. The weight of doing it on my own gets overwhelming at times. Don’t get me wrong, I have support and wonderful friends and loving family and yet it comes down to me, my beliefs and making it happen. As I told the babies' father once – “Of course it will work out because I will make it work out. There is no other way.” I remind myself that I was given this gift of being a mother of two and so I have to believe that I will also be shown the way to care for them. This is a blessing.


Blossoming - July 9, 2010
Ok, so it has happened, I have found my first pregnancy stretch mark, on my breast of all places! Blah…….

I swear I have gone from looking chubby to looking pregnant over night! I am without a doubt pregnant, even down to the waddle. I finally gained my first pregnancy weight, 11 lbs in one month! As the doctor said yesterday, women carrying twins (or more) experience pregnancies that move faster with stronger physical effects. So breasts have blossomed, belly has blossomed and ankles have blossomed (lovely swollen ankles). I was gifted with a big bag of maternity clothes from a friend who was pregnant a year ago but I can’t fit most of them. I am too big already!!! Thanks anyway Amanda.
Babies sitting on sciatic nerves – so not right – Ouch! It is getting impossible to sit and see clients all day without a walking or laying down break a couple of times a day. But I do have a friend who knows pregnancy massage, yippee John!

Spent the 4th of July weekend with most of my family in Tucson to celebrate my grandpa’s 90th birthday. It was wonderful to see aunts, uncles and cousins who I have not seen in years! I was so happy that my wonderful brother Lucas and his wife Whittney (Owen’s parents) where able to join us. I know it wasn’t the easiest visit for them since they should have been able to show off their beautiful son Owen to everyone. Owen’s spirit was there.

I am blessed with a loving supportive family and I know it. The father of the babies continues to seem – as a rule – disinterested. I spend most of my time and energy in faith, trusting that they AND I will make it to their birth and beyond but there are times when I am aware of sadness and loneliness, desiring someone to share this with me on a day-to-day basis. The thing is, that even if the father was willing to be here with me everyday, he is not the one I love. He is not the partner I need. I don’t dislike him, truth is I feel no connection to him. But he is the father so I dance the line without clear-cut definitions, expectations (maybe unfair) that are not met and confusion….

But I am going to be the mama of amazing babies! And July 12th I find out their gender and confirm their development. Over the past couple of days I have wondered if maybe there are three in there not just two! lol

Twin to Twin Transfusion Syndrome - July 12, 2010
July 12th, the big day when I got to find out if the babies were boys or girls. The opinions were split 70/30 in favor of girls. That was my guess too. 70% of us were wrong. They are boys! Very obviously boys as both of them showed off their “boy parts”. Two active, inquisitive little boys, oh my….

But that was not the only news I got. This ultra sound was a full one with the measuring of everything on each baby. They found some differences in size and in the amount of fluid in each baby’s sac. All of these things pointed to Twin to Twin Transfusion Syndrome, TTTS. Of course I had never heard of such a thing. It is fairly rare. It only happens about 10% of all identical twin pregnancies, around 2000-3000 a year. (Since I wrote this I have learned that it happens to upwards of 15-20% of identical twin pregnancies, known as mo/mo or mo/di. It has also been known to happen to di/di identical and possibly non-identical twins.) I was supposed to travel to Portland to visit friends and family later that week. When I asked the doctor about going, her response was. “If you miscarry you will do it whether you are here or there so go and enjoy yourself.” Not a response I was impressed by. I chose not to go…. The doctor also recommended that I get an amniocentesis done to check for genetic issues, which I refused. She did recommend a perinatalogist group for me to follow up with.
I went home shaken in shock and fear, getting on the internet I found the www.tttsfoundation.org. I read everything, emailed the foundation and immediately started on the recommended diet of extra protein and iron. I heard back from the foundation and they recommended that I meet with Dr. John Elliott if I could. He was on the TTTS board and actually had come up with the first procedure to help with the syndrome in the 80’s. Before he introduced the procedure of amnio reduction the mortality rate was 90%. His introduction of this procedure dropped it to about 50%. As it turned out Dr Elliott was a doctor with the group I was referred to. I made an appt with him for a couple of days later.

I went in for my appt with Dr Elliott, getting another complete ultra sound and a full sit down discussion on TTTS. Dr Elliott choose to NOT diagnose the boys with TTTS but he did recommend weekly ultra sounds to track their progress because the syndrome can move and change quickly….
So that was it. I found out my babies were boys and I got to enjoy that news for approximately 10 minutes before the words twin to twin transfusion syndrome were said. Well, at least one of the expert doctors on this was in town and was NOT diagnosing them yet. This had to be good, right?

Houston: We Have A Problem - August 5, 2010
July 26th – it is time for another ultra sound – one a week to see if/how the twin to twin transfusion syndrome is progressing. 10am ultrasound now shows a “stuck” baby. One of the boys’ sac, Eli’s, had reduced down to almost nothing. It broke my heart to see his little body all curled up and unable to move. So, it is official. The boys have TTTS and something must be done about it. The doctor sends me directly from the office to the OB Triage at Good Samaritan Hospital in Phoenix.

I am terrified. Trying very hard not to cry, I call my mom in Tucson, let her know what is going on and ask her to drive up and be with me. I drive myself to the hospital. I end up being a direct admit to the hospital and am put in a room in labor and delivery.

The doctors come in to talk about options for the babies. We could do everything from doing nothing, amnio reduction, surgery to selective reduction…… I was also told that if I choose the amnio reduction it would be very unlikely that I could choose surgery later as many surgeons will not do the surgery after an amnio reduction as it can cause complications for the surgery. The surgery is endoscopic laser ablation. The surgeon lasers the blood vessel connections between the two different umbilical cords so that each baby then gets his own blood supply and one cannot take from another. The problem with the surgery is that there is no one in the state of Arizona who does it. I would have to go to Houston or LA and possibly pay for EVERYTHING out of pocket. I did not even consider the surgery as an option and after some quiet time went with the amnio reduction.

The reduction was done that night. The doctors went in with a needle using an ultrasound machine to stay away from the babies and with gravity allow the amniotic fluid to flow out of the largest sac, Nolan’s. The maximum they will remove at one time is 2.5 liters. They have found any more can cause problems with the placenta. So they removed 2.5 liters from Nolan’s sac in the hopes that would give Eli’s space to grow.

I spent the night in the hospital and was released the next morning with another ultrasound scheduled for the 29th. When I went in on the 29th I learned I had another “stuck” baby and that Eli actually had less space than he had before. For it to get worse in 3 days after the reduction, the likely hood that another reduction would make any difference was very small. I was going to lose one or both of my babies without the laser surgery. But what if I had just killed any chance of surgery by doing the reduction??? And, how could I make this happen financially??? I went home and asked for help from everyone and anyone I could think of.

I was sent back to the hospital on the 30th and met with the doctors again. The hospital got in touch with my insurance to start the approval process to have the surgery in Houston and one of the doctors got on the phone with one of the surgeons in Houston and spoke with him directly concerning my case. Suddenly, I was scheduled for surgery in Houston on August 3rd and was told by the surgeon in Houston not to worry about my insurance covering it or not for they had ways of getting it taken care of.

And so it was – I went from thinking I had to consider selective reduction to save one of the babies lives to having a glimmer of hope through the surgery that both boys would make it through. With the financial support of my amazing family, my mom and I were on a plane to Houston on Sunday, August 1st to meet with the doctor on Monday the 2nd for surgery on Tuesday the 3rd.

The doctor’s appt on Monday went well. After a 2.5 hour ultrasound and a 45 minute consult the doctor said I seem to be a good candidate for the surgery. They work out of Texas Children’s Hospital and had done 206 of these surgeries to date. They said their survival stats were the best in the country – 70%-75% of patients go home with both babies, 15%-20% go home with one baby and about 10% lose both babies…..

Surgery was scheduled early morning on Tuesday, August 3rd. I was in the operating room for about 1.5 hours and the surgeon called the surgery a success. There had been 7 connected blood vessels between the two boys, the doctor separated all of them. No complications. The ultra sound to see how the babies were doing was scheduled for the next day. I spent the night in the hospital sucking on lifesaver popsicle praying that both of my boys would make it through this surgery and that I would hear two heart beats at the ultra sound the next day.

I heard them. Two heart beats.
Mom and I flew back home to Phoenix on Thursday the 5th.

Preterm Premature Rupture of Membranes - August 26, 2010
Wednesday, August 25th, 26wks gestation. The boys were doing well after the surgery. Both sacs were almost equal and I could feel both of them moving around inside of me, making me smile. I woke up at 7am after a really uncomfortable night of pseudo sleep and knew something was wrong. I got out of bed quickly as a rush of liquid ran down my legs. I knew without a doubt that my water had just broke. All I could keep saying to myself was “No. No. It’s too soon. No!”

I got dressed and drove myself to Good Sam and checked in to OB triage. Another call to my mom in Tucson asking her to drive up and be with me. To no surprise to me the nurse confirmed that my water had broken and they admitted me to the hospital. They moved me in to labor and delivery and started me on a 48 hour dose of magnesium sulfate to stop any contractions, three rounds of antibiotics to stave off any type of infection and steroid shots to help the boys lungs to develop due to possible delivery.

If you have ever gotten magnesium sulfate you know the hideousness that it is. It works as a muscle relaxer so that at the end of the first day I had to use a “bedside commode” since I had fallen on my way out of the bathroom already. At the end of the second day I could barely lift my hand to eat and could not focus my eyes to save my life. But it did stop any contractions and allowed me to get both shots of steroids to help the boys’ lungs develop.

After that I was moved to an antepartum room for my hospital bed rest. I was going to be in the hospital until I gave birth. They don’t really know why someone’s water will break early. Sometimes it is due to an infection of some type and then after it breaks it is easy for infection to set in since the protection of the amniotic fluid is no longer there. My blood and body never showed any type of infection.

During my stay in the antepartum room the contractions came and went. I had been on nifedipine since August 10th to stop preterm contractions. They did not continue that medication but did give me shots of terbutaline a couple of times to help stop them. My cervix never dilated so they tried to keep a balancing act of keeping me pregnant as long as possible and making sure there was no danger of infection to the boys or I in the process.

The nurses would hook me up to the fetal monitor every evening to hear the babies heart beats for an hour. It was always comforting to hear them but since they were always on the move, especially Nolan, they would have to move and readjust the monitors and sometimes just sit with me and hold them so that they could track. Both heart beats were always strong.

I stayed in antepartum until September 1st. I was then moved back to labor and delivery because the contractions had become strong but since my cervix was not dilated at all I might be needing a c-section soon and the labor and delivery rooms were closer to the operating rooms. The doctors decided to give me another round of magnesium sulfate, this time not necessarily to stop the contractions but because it has shown to offer a some type of protection from any neural problems that could come up for the boys. The second round of magnesium was worse than the first. It stopped the contractions but really messed with me. BUT every day that my boys could stay inside of me was equal to 2-3 days outside of the womb so it really didn’t matter how I felt.

During this stay in the hospital I didn’t have many guests and I did not want them, other than my mom who was always there. My entire focus was keeping these boys safely inside of me. I slept with the two teddy bears that I had received as gifts from my friend John. I held on to them tightly. I talked to the boys, visualizing the three of us together with Divine light shining down upon us keeping us safe and healthy. I prayed for strength, protection and the ability to accept whatever may happen for the higher good of the three of us. This was a very private time for me and my sons. I know that my decision to not have visitors seemed strange but it was what I needed for me to get through this very scary time.

The boys were at 27 wks gestation.

Birth Day - September 4, 2010
As the second round of magnesium sulfate began to wear off and I started to regain my senses the contractions began again. Throughout the afternoon of September 3rd they went from almost unnoticeable to uncomfortable to painful. They ranged from 15 to 6 minutes apart. Finally around 10pm (I remember the time because we were watching MASH on tv) I asked for pain relief, whatever they would give me. They gave me Vicodin and morphine. The doctor came in to check my cervix, not dilated, at all. If I was going to have any babies anytime soon it was not going to happen naturally. Of course I did not WANT to have them any time soon. They were only 27 weeks and 2 days gestational – 13 weeks early….

During all of this I am attached to a monitor to track both babies heartbeats and my contraction levels. So I can hear the boys heartbeats in the back ground. I noticed as we got later into the night the machine would lose one or both of the heartbeats during my contractions. That scared me. I didn’t like not hearing both of my boys hearts. As we got closer to midnight the pain of the contractions was too much for the pain meds they had been giving me and the contractions were inching closer and closer together. My mom had decided to spend the night in the room with me and got the nurse for me. The nurse came in and sat with me to try to track the babies heartbeats and brought more pain meds with her. I tried laying in different positions for my comfort and for easier baby tracking. That didn’t work. My blood oxygen levels started to drop and the babies heart beats, especially Nolan’s started dropping with each contraction sometimes all the way down to 50 a minute (normal for him at that point was around 150-165). It would bounce right back up after the contraction was over but they were coming so quickly there was little rebound time.

The nurse left for a couple of minutes to find page the doctor and the pain got so intense, like nothing I had ever felt. I could not move in response to it because of the baby monitors on my belly. I did not was to dislodge them. It was so much more important that the nurses be able to tell that the babies were okay.

Suddenly the nurse came flying back in the room followed by a couple of other nurses and a doctor I had not met yet. As the doctor walked through the doors she told me I was being moved to an operating room. One of the babies was not tolerating the contractions well and we needed to do an immediate c-section. I heard one of the nurses say heart rate of 15. I knew that had to be my Nolan. He was the one who was head down at the bottom of my uterus. At this point I went into shock and much of what happened is a blur. I suddenly had, what seemed to be, a room full of personnel. One was one my bed, over me attaching and unattaching things. They gave me a shot to stop the contractions and started rolling me out of the room. I saw someone talking to my mom as they took me out. I don’t remember feeling anything as I went into shock. I heard them discussing which OR room they would be using. Was the NICU advised that there were going to be twins? I watched as they put on their OR gowns as they ran and pushed me down the hall. That was when I started to shake.

We came through the doors of the operating room and I moved to the operating table. My body was shaking so badly in shock that my legs were bouncing off of the table, my shoulders were shaking and teeth chattering. I heard the doctor ask for warm blankets and they wrapped me up in them. It slowed my shaking but did not stop it. I tried to focus on my breathing. The doctor who was going to give me the spinal block introduced himself and explained what was going to happen. He asked me if I had any questions and I shook my head numbly. I could hear the nurses in the background counting the number of instruments and tools out loud. I heard the doctor telling them they needed to speed it up. A nurse came up to me and helped me to sit up so that I could get the shot. I will never forget how she put her arms around me to hug and hold me up. She told me to put my head on her shoulder. I did. If I saw her face, I have no memory of it but whoever she was, in that moment, she was an angel to me. I vaguely remember being fearful that the shot would hurt. Ha! I think I was in such shock they could have done the c-section right then and there and I would not have felt it. Instantly I felt a rush of warmth shoot down from my rib cage down to my toes. Relief, the shaking stopped.
Somewhere in all this surgery prep my mom showed up in her scrubs. She was going to be there with me. I had no idea. The anesthesiologist introduced himself and he and the doctor explained what was going to happen next during every step of the surgery. I felt tugging and pulling as they cleaned my belly. Once they started it seemed almost immediately that Nolan was out. I felt a release of pressure. No crying. At this point I was VERY thankful that I had spoken with one of the neonatalogists about a week earlier. He had told me that in c-sections for premature births the babies rarely ever cried so I was not to worry if I did not hear any cries after birth. He also told me that each baby would have his own doctor and nurse to care for it the minute it was out of my body. I did hear them call his birth time of 1:55am. I looked at the clock and saw they were right. Soon after that someone came and got my mom so that she could see Nolan. I closed my eyes. I was overwhelmed. I was so filled with emotions that I was effectively numb. My mom later told me that Nolan was blue when he came out. His initial apgar score was 2 within the first minute of life (zero is the lowest)

Now it was time for Eli to be born. I heard the doctor saying that she could not find him. (Eli spent most of the pregnancy up near my rib cage on my right side.) Then I heard grunting. It was a strange thing to hear coming from the doctor. She told the anesthesiologist that she needed something to stop the contractions. She said it twice and then a couple of minutes later Eli was born. I learned later that the contractions had been sucking him deeper into my uterus and they had to do a T-incision to get to him. The grunting I heard came from the doctor as she literally had to use all of her strength to get a hold of Eli and pull him out. Again, no cry. Birth time 2:00am.

I think, somewhere along the way someone told me both babies were fine. They started to stitch me up and the neonatologists brought both boys past me so that I could see them as they left the OR to go to the NICU. Both of them had breathing apparatuses on so it was difficult to see them. But they were there and they were tiny. My mom went with them. It took about a half hour to close me up. On my way out the OR to recovery the doctor told me that I had needed a T- incision so if I was going to have anymore children I would have to have a c-section, vaginal delivery was not an option. I nodded. Had I even spoken a word during this whole experience? I really don’t know.
Nolan and Eli, my babies, were born alive, both of them. They were 13 weeks early and they were going to face many challenges in growing and developing. September 4, 2010 – Birth Day – I couldn’t wait to see them.

Thursday, September 5, 2013

The Boy's Third Birthday

It’s my boys’ third birthday today and it’s time for me to write my letter to both of them and let them know just how amazing they both are and what I have learned from them this year.

Nolan – my sweet amazing survivor. This past year the word autism came into our vocabulary. At first I was advised that you were “at risk for autism” and through a number of appointments, evaluations, questions that was changed to a full diagnosis of autism in May. One of the hardest things for me in this process was to talk about what you could not or did not do. That was the absolute opposite of how I choose to see our lives, your life. I choose to live life in the terms of what you can do, what you have overcome and just how accomplished, bright and sparkly you are.  And - being the mother I also know that the world, as it is now, needs that diagnosis so that I can get the extra support, guidance and love you deserve to help you to become the amazing person you already are. So I allow the diagnosis but I will never allow it to discount you, your abilities and your light. I have seen you grow in your understanding of the rules of the world as you gain more experience and trust in this place you have landed for this lifetime. I have watched you reach out to your teachers and therapists and have seen their eyes light up with excitement and joy at your continued growth and development. Your smile sets hearts afire, truly it does. I have seen it. I have felt it. You started preschool this year. You started playing on playground equipment. You went down the slide! Your future is unbound, full potential, joy, excitement, growth and success. This I know to be true. I promise you that anyone who knows you or knows of you will also know that this path that you are on has an ending that is beyond anything we can imagine. I love you my beautiful boy.


Birthday morning before school.


Eli – my shining star. First I must say that I know you are close to us. I know that you hear and see Nolan when he looks at your picture and says “E”, or when he sings “Eli, Eli, Eli” for no apparent reason. I know you are the reason and you are very apparent to me. In February John left this earth unexpectedly too. I know that you were there to meet him after he transitioned. The two of you are connected in my heart. Please tell him I love him and give him a hug from Nolan and I. It has been the through the wisdom that I have gained in being your mother that I have the understanding to offer support to my clients who are looking for connection with their loved ones who have transitioned. It is the depths of my grief over your death that has opened me up and allowed me to support others in the depths of their grief. I have seen your hello’s to me in the Eli skies; the sunlight streaming through the clouds in lines of light, numerous times this past year. I finally received the Molly Bear I requested in your honor. He is beautiful and brings a smile to my face. Also, finally, I put together and ordered your memory book from Shutterfly. I smiled and cried as I created it. I smiled and cried when I opened it. I smile and cry when I remember you. I love you my sweet son. I miss you. I know that I will see you again and until then I promise to continue to care for your brother to the best of my ability and to use the love I have for you to help and love others. Happy birthday my Eli.


Nolan kissing our Eli Bear. He has just started doing this recently.

Friday, March 15, 2013

Two and a half years

It is a strange thing. Getting older has never really bothered me so my birthdays never really bothered me, until recently, and it is not because I am getting older.
My birthday is one day off from the exact 1/2 year of Eli's death. It is strange how certain days take on different meanings as time goes on. Nolan and Eli were born on September 4th. Eli died on September 15th. My birthday is March 14th. I have noticed that the time around my birthday is almost as emotional at September 15th is.
I think it is a combination of things. My birthday indicates another step in time that I am taking away from my baby boy. Another progression in life that I am taking that he is not here to take too. And I just miss him. I have been feeling my grief for the past couple of weeks; bursting out in tears at something on the tv, crying myself to sleep, being distracted and disorganized. I think Nolan felt it too tonight. He was clingy at bed time wanting extra cuddle time before sleep.

My birthday was quiet yesterday. I did homework. Nolan and I went to target and to the chiropractor. She did some great work on me, helping me with the facet joint that still hurts sometimes from the car accident. She did some great cranial work on Nolan. And then Nolan and I had dinner with my mom at Carrabba's. (I love their calamari!) I had my pj's on by 8:30p and was happy about it. I was hurting from the chiropractic adjustment. It's also been a month since my friend John died. I was missing him too.

Today I had an appointment with an RN, Peggy, from ALTCS (Arizona Long Term Care Services) so that she could evaluate Nolan for ABA services through Department of Developmental Disabilities. I always dread these things. I so desire to speak of Nolan in positive terms, talking about all the growth and development I see him do daily. It is almost physically difficult for me to talk about his delays or limitations. But that is what I did, what I had to do, so that he could be considered for services. Peggy was kind and seemed to be rooting for us. She asked me about his medical history and of course I talked about the pregnancy, TTTS, the laser surgery, PROM, premature birth, the NICU and Eli. This, very possibly, could have been the first time in my life that I did not cry as I spoke of our challenges and how one of my little boys died. Because she was an RN, she was interested in some of the medical explanations for TTTS and I was happy to educate. She looked at me and said "This has been a hellish 2 1/2 years for you, hasn't it." I nodded and once again did not cry. That is when I usually do, when someone makes a kind, sympathetic comment, but not this time. I wasn't holding it back. After 2 1/2 years I am stronger in talking about it. At least sometimes. It seems as though Nolan's capabilities/challenges put him right on the edge for approval of these services. She said she may call me back for some clarification if he scores close or I would just get a letter. If he doesn't get approved right now Peggy also said to reapply at his 3rd birthday. Se we wait.

I see the subtle changes and growth in my little boy every day like how he has gotten to the point of grabbing on to the railing with one had while holding my hand as he walks down stairs. This is such a huge improvement from when going down stairs would overwhelm him so he would just try to dive down head first. These are exciting and wonderful things for my little boy. I am so proud of him. He amazes me EVERY SINGLE DAY.

And finally for my birthday I had my mom look at my solar return (astrology) chart to see what this year had in store. We talked for awhile but the thing I remember the most was her comment "No more mister nice guy." This is my year to stand up and take chances to make big changes.

So while I make those big changes I am going to celebrate those small changes too.

I miss you my sweet Eli.
I miss you, my friend John.


Picture of John feeding Nolan. 

Friday, September 21, 2012

It's 1am

It is exactly 1:06am and I am up and looking at pictures of identical twins. Why in the hell would she be doing that, you might be asking... I am not sure I know the answer. Because I miss my identical twin boys. They are not identical now. Why is that important? I don't know. Maybe it's not. Maybe it is just that one of my boys is here with me and one is not. And right now at 1:11am I am feeling it. Not crying though. I am feeling resignation and anger all at the same time. Resignation - it is what it is and there is nothing for me to do to change it. Anger - it is what it is and there is nothing for me to do to change it. One reason, two emotions.

This grief is not for the weak and you cannot know how I wish I could be done with it. I cannot count how many times I have heard "The grief does not end. It changes." and I know that my love for Eli will not end just be transformed, as it already has. Thing is, I am not really feeling all that transformed right now.

As another mother who also lost one of her twins to TTTS just said, "but I've had more good days than bad but there are still days I don't want to get out of bed.." I understand that sentiment. I have lived that sentiment. This process truly is a process that demands the choice to continue getting up and living every single day and sometimes, on bad days, every single hour.  It is a repeated choice. I am blessed to have this choice, and yet, I still wish, sometimes, to not get out of bed and to hide from my life, just for a little bit. Truth is though, that does not work either. It is actually easier to get up, get out, live, laugh and love, love and love some more. But sometimes I still wish.

I am having some of my TTTS friends going through VERY difficult times right now. One beautiful mama had to put herself into a mental health facility to try to support her grieving process. Because grief is ugly but grief that is stuck feels evil to the soul. Another beautiful mama just found out her 3 week old rainbow son has neuroblastoma. What do you say to a mother who lost both of her little girls to TTTS and when she goes on to have her rainbow baby she learns he has cancer? I don't know, so all I have is I love you and I support you in anyway I can.

I would humbly ask that you hold these mama's and their families in your prayers or in love and light or whatever it is that you do to keep hope and strength and courage and love flowing their way.

It is now 1:26a. I believe I am done looking at pictures of identical twins now. It is time for me to sleep. So I will end with the picture of my beautiful little boy. This is his thank you card to everyone who came to his and Eli's 2nd birthday party. It was a great turn out.  :)



Monday, September 3, 2012

Letter To My Boys - Second Birthday

In three hours it will be officially Nolan's 2nd birthday. Five minutes later it will be Eli's 2nd birthday.

I know I haven't written much lately. As I mentioned in my last post there were some changes happening that, to put it plainly, I didn't know what to say. I will talk about those in another post. But I knew that the 2nd birthday of my beautiful little boys and my letters to them was the perfect time to step back into my blog.

So here goes!

To My Amazing Nolan -
What a year it has been. There is no one on this earth who would look at you now and know that you started out fighting TTTS, born 13 weeks early and spent almost 3 months in the hospital with two surgeries under your belt before you were 6 months old. This past year, you moved from standing up with the help of the furniture to running around with excitement and pure joy. You graduated from your need for thickened formula/milk and are now eating like an adult. Well, almost, if you know of any adults who like to rub mashed up banana chunks in their hair or sometimes the random piece of hot dog. I am guessing it is good for your hair because you have beautiful hair.  You are still careful with your words and haven't stepped out to claim any one word as your official first word but boy can you let me know what you want. With the way that you read and study things, sometimes I think you will actually read me a book the first time you talk. :) You have become a fan of the Super Why cartoon on PBS. Even giving a kiss to Pig and Red Riding Hood sometimes when they come on. You have good taste - both are very cute.  :)  You have learned to be friends with Tobey the cat, to Tobey's relief, and understand the term "gentle hands" when you pet him. You love applause and clapping, for anyone, anytime, so filled with joy, smiling a huge smile and clapping away.

You have perfected the art of throwing yourself down on the floor so you have a soft landing during your rare 5-10 second tantrums. And have even been known to laugh at yourself while throwing those tantrums. You have also perfected the art of throwing a ball, actually two balls at once! Your intuitive sense of how electronics work and what buttons do what amazes and maybe even scares me sometimes. And you still shine your light brightly. I see the looks that children and adults give you when they pass by, smiling, waving, little girls coming up to try and kiss you. Oh yeah, that Venus/Mars conjunction in Libra is showing up already! (Astrology talk for charming.)

You got sick for the first time and the second time and the third time this past year but you are so strong that the first time was only for 48hrs and the third time only happened because your immune system was down from the 2nd time.  :0)  You saw a chiropractor and he told me that you had to be one of the strongest little boys he had ever worked on. PS - you charmed him too.

What I have learned from you -
I could spend all day, every day with you and I would still want more. I love that "Nolan's mommy" is one of the hats I wear in my life, one of the most important ones in my life.  Being responsible for you makes me want to do more and do better for you, for us. You have shown me that being present in the moment is one of the best things I can do for both of us. You will always have my heart, even as you grow up, find your own way and make your own life. It is my love for you that has gotten me up and moving every single day this year, with a back injury from an accident and other health issues. There were times before you and your brother when I would hide under the covers to just get away for awhile. I don't do that any more. I get up and make a life for us. Not because I have to but because you have worked so damn hard to be this wonderful child that you are.  You are making it past your challenges and difficulties to be here now, you deserve at least the same from me. You teach me about love every day with every breath, every smile, every tear.
I love you my shining little boy.


To My Amazing Eli -
All I have to do is say your name and I am filled with your presence. This communication and connection between us is natural and real. I love that you ride in the car with me and we talk then. It is that quiet time when I feel close to you. And then just as confirmation you make yourself available to my friends who are open to hearing and feeling you.  People respond to your spirit as strongly as people respond to Nolan.

I know that it is you who is working on the other side to help bring the parents of those children to me. The children who let me know why they do what they do and what their parents need to understand to help them cope and function in this earthly life. And these children see me. Your life and death helped me to step into that part of my work. You also help me in connecting with those who have passed. You are my bridge and I am so thankful.

As I started standing up and speaking to groups again, it was your spirit that came to me. I felt your love and a couple of times simply giggled in joy at the feel of you.  You have helped me, made me Love Out Loud and See Love in all things. I am honored to continue to feel and share your love in my heart with as many as I can.  I will continue acts of service and kindness, large and small, in your name and your memory.

And I still cry tears because this human mama still wishes to see your eyes, hear your laugh, kiss your cheeks and hold you close. I miss you in the physical. It is one of my greatest hopes that I will again get to hold you close to me and know that it is you that I am holding and that you will know me.

Your birthday party is on the 9th. Keep an eye out for those balloons we will be sending to you. They will have notes of love and birthday wishes all over them, from some of those people you have touched. Your name will be on the birthday cake too. Nolan and I will blow out your candle for you. :)

Eli, my star angel. "Some people only dream of angels. I held one in my arms."
"A luminous light remains where a beautiful soul has passed." Thank you for lighting my way through my grief at your departure.

I love you heart and soul.
And PS -
Thank you for entertaining Nolan when he wakes up in the middle of the night. I know, I hear him laughing. :)

To both of my boys -
You continue to do your magic in my life as I knew you would. Just being here, being who and how you are is a gift of love, growth, service, joy, happiness and patience.  I really don't know if things "happen for a reason" or if there is a "great plan" but I know that I will continue to find the perfection of having you both as my sons for the rest of my life. I know I am blessed to have two powerful spiritual beings in my life, as my sons. I am so grateful for you. It is my job as your mother to create places on this earth for your light to shine brightly and I will continue to do that with great love.




Thursday, March 22, 2012

Good news

Happy Birthday to me!

I got some good news for my birthday last week.

As it turned out, the ultra sounds and MRI's that had been done on my back because of the car accident showed something unexpected. A cyst on my right ovary. I have had ovarian cysts and endometreosis before so it was not a big surprise when another one was found. So I got my referral to the ob/gyn, made my appointment and showed up.

Now, I have to say that this was my first ob/gyn appt with a doctor that did not know the story of my boys and our fight for their lives. As I sat in the office filling out the paper work my mind kept going blank -
How many pregnancies?
How many live births?
How many living children?
How many surgeries?
I found that I would look at a question on the sheet and instead of answering it I relived the question and answer in my head and would completely forget what I was doing.. It took me a long time to complete the forms and a lot of deep breaths to keep the tears at bay.

Finally I completed everything and was called back to see the doctor. First time I had ever met him. He was very matter of fact, not unkind, just direct. Whenever we got anywhere close to my recent pregnancy I would feel myself floating away again. But mostly we talked about my past endometreosis and ovarian cysts. It was very comfortable and casual until he did the ultra sound. Suddenly his voice became serious as he started talking about cancer and possibly needing a hysterectomy. My head almost spun because of the quick change.

What he was seeing was a complex tumor, he said. Suddenly he dropped the term cyst and because of my family history with ovarian cancer he wanted this taken care of immediately. He told me that I was to get the CA-125 blood test for ovarian cancer. If it came back positive he would direct me to a gynecologist oncologist for an entire hysterectomy. Even though there are MANY false positives for this test, that was his plan. If it came back negative then he would remove my ovary himself. Either way, due to the type of tumor there was no allowing it to grow or burst on it's own as it could make me very sick and damage other internal organs. He sent me directly to the lab in the next medical building over and I felt like I was in shock...

All of this happened before the amazing experience of letting go of the previous post. It was actually the afternoon after this appointment that my fears dropped away but I did not want to post anything about the doctors appointment until I knew the results.

Well, the wonderful news is that the test came back negative for cancer so I will be getting an ovary -ectomy. I don't think that is a real word but it sounds funny. And because of the amazing realization of the last post I am not worried. What shall be shall be. I shall take care of myself, love my life and those in it and move forward. It looks like the surgery will be in the next couple of weeks. I am ready to complete this cycle.

PS - just in case I did not remember, I am a mom. How do I know this? Well, I took my son to the childrens museum in celebration of MY birthday. :) Here is a picture of him looking at the kids playing below


Nolan got me a special birthday gift because it was 18 months ago on March 15th that we said goodbye to our sweet Eli. He gave me two solar garden butterflies. I put them out in the yard on Eli's anniversary and here is a picture of how they lit up that night and every night since then.

Thursday, September 8, 2011

First Birthdays and Angelversaries

So last Sunday was my boys' first birthday. How strange to only celebrate with one of them. I held the party at a beautiful park. So many family and friends joined us in the 110 degree heat - Oh My Goodness.....

I was really excited to celebrate Nolan's birthday. I feel like he got shorted. He and his brother came very early - before the shower. Then of course Eli died and Nolan was in the hospital for over 2 months after that. When we did have a baby shower, it was very small. The situation of my boys' birth just did not leave much room for the celebration my little miracle deserved. So, I was so very excited to give Nolan the party he deserved where he would be celebrated as he should have been.

It was an emotional day for me, very up and down, tears and smiles, and sometimes both. One of Nolan's and Eli's NICU nurses, Amy, joined us at the party. The moment I saw her walk up to the party I started sobbing. I surprised myself. There was such emotion that sprung up when I saw her, the gratitude for her care of my sons, her connection to Eli and the fact that the last time I had seen her was the last night Nolan was in the NICU. For a couple of months after Nolan's release I would call/text her with questions or concerns, she was always there for me. She truly was a guardian angel to Nolan and I during the first months of his life.



Amy feeding Nolan with me watching - she taught me how to feed Nolan!


There were a couple of more times throughout the party where I shed some tears, whenever I spoke of Eli. About midway through the party I invited everyone to take a sharpie and write a note to Eli on a balloon so it could be released to him at the end of the party. I could barely get the words out before I started crying. We released them at the end of the party. They had notes of love written all over them.



I am coming up on Eli's one year angelversary. That is a term many mothers who have lost their babies use to explain that devastating day when their child left their arms forever - angelversary. I CANNOT believe a year ago today I still had two little boys living, developing and growing as they should have been. A year ago today was the first day that I had held both of my days in one day and I held both of them at least once everyday until Eli's death. I want to do something special with Nolan in memory of his brother but I don't know what yet... I guess I still have time - "A" day is September 15th. Eli died September 15th. September 15th.....

To end I want to include a picture of the beautiful birthday boy with birthday cake all over his face. I love you silly monkey!



Saturday, September 3, 2011

A Letter to My Boys

My darlings -

Mommy here. I just had to write you a letter on this amazing day - the first anniversary of your birth! It was on September 4, 2010 that you decided to make your very dramatic entrances into this world. Nolan Gabriel, you were born first at 1:55a - you seemed VERY impatient to come out. Eli Michael, you were born next at 2a - you were VERY hesitant to come out. You are my first and second children. What blessings you are.

Though you are identical twins I am learning the roles you are playing in my life are oh, so, very different.

My "sweets" Nolan - I love you so. What a gift you are in my life, every single day. I am honored to be your mommy. You have taught me just how patient I can be. You have confirmed that it really is the simple things, like your smile, your sleeping face, you reaching out to me to be picked up, that hold the meanings of the universe. I have always been protective of those I love AND nothing compares to how I feel about you. If someone wants to get to you they have to go through me and I am not easy to go through. I am in awe of the miracle of you. There were so many times when I was pregnant with you and your brother that something could have gone wrong in our battle with TTTS and I could have lost you. You have fought unbelievable battles to be here today to celebrate your 1st birthday. I am so proud of you.

Nolan, I believe that you are here to keep me on track on this earthly plane. Keeping me moving forward and making my goals for this life more concrete. You ground me, my little Virgo son. I desire to create a home and life where you are safe and surrounded by color, joy, beauty and love. I intend to teach you how to navigate being human in this world and always help you to remember the amazing spiritual being that you are. I know that I must live and breathe these things in order to support you and so I do - And will continue to grow in this area for the both of us.

Nolan Gabriel


My "star child" Eli - I love you so. You are missed daily by me, your brother and all your family. Somehow I knew, somewhere inside, that you wouldn't be staying long on this earth, regardless of how much I wanted you to be here. I still cry for you and I am thankful to say that the deep evil void I felt at your death has lessened. But this, of course, I know you know already. I feel you, hear you and see you and I know your brother does too. Thank you for the 11 beautiful days you gave me to see you, touch you, talk to you, hold you, feed you, change you, advocate for you. I am learning from you, my beautiful son. I know that you are helping me to be a better mother to your brother. I am blessed to have you as my teacher. I am blessed to have you as my son.

Eli, I believe you are here to help push me forward in a way that your brother cannot. It was through your death that I was forced to go to places in my heart and soul I had never conceived of before. I carry you deep within me (like I did when I was pregnant) You live, grow and thrive within me. You force me to walk my talk. I will work hard to do good work in this world in memory of you and in honor of the love you helped me to understand.

Eli Michael


Happy Birthday my sweet, darling, miracle boys. I love you always and forever. It is my deepest hope and greatest intention that I be the person I believe I can be so that I can be the best mother I can be to each of you, in the best way possible.

Love you with the depth of my being -

Your mommy